Shake rattle and roll rather than fid... - Restless Legs Syn...

Restless Legs Syndrome

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Shake rattle and roll rather than fidget, twist and stomp

11 Replies

Hi All I came across this and was wondering if anyone else has experience:

niagaratherapy.co.uk/restle...

It seems a bit like the relaxis pad.

11 Replies

Hmmm, is all i can say. Not heard of it before. Supposed to vibrate to stop the RLS sensations so that you sleep. raffs i couldnt see a price for it. ?

in reply to

That's the catch, can't find a price without calling. I assume you get a hard sell then! I like the idea of the vibrating chair, (RLS or not) but would imagine it would be too expensive.

Madlegs1 profile image
Madlegs1 in reply to

Imagine it works like rhe Relaxis pad. Will probably be priced similarly!

Any of these work on the distraction principle, I find, rather than the benefit of actual massage.

But if it works, then - great. Assuming it doesn't cost the earth.

I am following a couple of people on another group i belong to that are using the relaxis pad, its not an easy thing to get to work, you have to try different settings, i guess for each person it would be different. A couple of them seem to have better nights sleep, still taking meds tho. One is still new to using it and havent heard how they are doing. They still dont have a distributor for the UK, but can direct you to a country in Europe that has a distributor. Still costs too much money for a OAP like me.

I have a Relaxis pad which arrived about 2 weeks ago. This device sounds like it works on similar principles but Relaxis is specifically for RLS and not the cure all that the NHC Cyclo-Therapy claims to be.

Obviously I am still in the early stages with my Relaxis and it certainly does not deliver a killer blow to full on symptoms for me but it has been sufficiently helpful that I don't think I will be sending it back at the end of the 4 week trial period. It was an eye-watering amount of money to shell out but I got a generous Christmas present of some cash from a relative and as I have lost the best part of the last 10 months to RLS, I have decided to prioritise tracking down anything that might have a positive impact on it.

My symptoms are gradually improving as my iron levels increase. I still need medication to treat them for now but my big hope is that eventually I will be able to deal with them using Relaxis and the occasional dose of kratom. Like many others, I am fixated on keeping my drug use as low as possible and I think Relaxis has a big part to play in that.

Mopsy1950 profile image
Mopsy1950 in reply toinvoluntarydancer

Please keep us posted if something like that works I'll have to come out of retirement to pay for it but it would be worth it😀

Jumpey profile image
Jumpey in reply toinvoluntarydancer

|yep please keep us posted-I would invest in one of it works.x

nightdancer profile image
nightdancer in reply toinvoluntarydancer

I am still waiting for them to get approval from insurance companies, which they have not been able to do in 4 years. I have 2 people in one of my groups checking this out, and they have had it for about 6 months now, and they say the learning curve is extensive. Never mind that the price absolutely prohibits me from trying it, and many other people. Please DO let us know if it is helping. of course, you are still on meds, and the iron, you think, is helping, so kind of hard to know yet if the pad is helping. But, you have a good brain I would like to pick, since you seem to have a lot of RLS knowledge.

Like I said, my symptoms seem to be improving at the moment - or my rls is going through a less severe patch - so Relaxis is not getting such an intensive trial.

I would repeat that it does not deliver a killer blow to full on symptoms - it is definitely more in the nature of an additional or supplementary option. I'm not sure it would work for me entirely on its own and I am still taking medications but it is great to have it to reach for when I wake up with the nasty tingly prequal to an attack. It really seems to work then. I love that it is an 'as and when' option - not a drug I need to be on whether or not I am experiencing symptoms - and also that it is not invasive.

If it was inexpensive, I would tend to urge it more strongly, given that it is non-invasive, but at that price it is hard to say definitely go out and buy one. The 30 day trial period does provide a good half way house I suppose. There is a European supplier and it would probably be worth trying to get it from him if on this side of the pond as I paid a hefty whack of additional import duty when I got it direct from the states. The European guy does not seem to be so insistent on receiving a medical prescription for it either. My GP was quite taken aback when I asked him for my prescription. He is intrigued by the device though.

I will post again as I continue to use it.

nightdancer profile image
nightdancer in reply toinvoluntarydancer

yep, in the US we have to have a prescription to even think about getting it.

You shouldnt need a prescription to get the relaxis pad if you are getting it in Europe. Thats why you get it from a distributor.

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