Docs culdnt care less.

[Jeanniebeannie]

Hi all, went back to docs as for months now legs have been worse. why ! who knows and was offered to up my medication which im not willing to do .and in couple o months time would need to do same again .so again will suffer. doc not got a clue so no joy .suffer in silence as we all do.

[Madlegs1]

What meds have you been on over the last few years?

[Jeanniebeannie in reply to Madlegs1]

Hi been on 75 o pregablin two a day plus 1and a half pramipexole and realy dont want to increase cause that used to b ok at one time but now for some unknown reason they are intolerable so im at the end

[keiralee]

Oh please don't suffer in silence. Do your research on here, ask questions on here, and then go back to Dr. My RLS is by no means sorted but I am not giving up yet. Have a pre booked telephone call coming up with her and will request something new that might help. Have gathered lots of info from these RLS sites which is just as well because she hasn't much of a clue. Don't give up !!

[Madlegs1 in reply to keiralee]

Thanks for the info- you are likely suffering augmentation from the Pramipexol. Whatever you do- do not increase the dose-that is what is causing the problem.

If you can search "augmentation " in the drop down menu at top of page you will learn a lot about your condition.

You need to get back to your Dr and explain this and that you need to stop the Mirapex very slowly and then see about the Pregabalin dose which may or may not need to be adjusted.

After you get off the Mirapex , you should feel a bit better- but it will take time.

Good luck - and keep in touch.

[Kaarina Administrator in reply to Madlegs1]

Jeanniebeanie

This link may help you:

sleepreviewmag.com/2015/02/...

You say your doctor does not have a clue so perhaps it would be a good idea to print out a copy or pass the link on to your doctor to read and digest.

It is important your doctor learns about augmentation if he/she is saying up your medication.

[SLMCP]

Have you been to see a neurologist?

[Jeanniebeannie]

Hi yes been three times now in so many years .to neurologist .last time she said all i can say is to look at it like this and said my wires are crossed in my brain thats all she could say. And not willing to up my tablets .so no joy.

[Mona23]

Then you need another doctor for your RLS symptoms. It’s not right for a dr. to give up like that - sounds like she just doesn’t want to learn about RLS, so she’s not giving you the best care. Sorry to say, but after 40 years with it (I’m 68) I’ve realized that I must educate my doctors in a kind way that they can accept. If the doc refuses, how can I stay with her? This is my only health risk, but it has a significant impact on my life (as you all experience). I’m still working it out, myself, so I know it’s not easy. Nothing about RLS is easy.