RLS and possible connection with bladder.

[popank]

Since having taken Pramexipole several years and proved successfull in keeping me steady during the night, I have noticed of late, that although it does not affect me whilst asleep in bed, but when I take the tablet before going to bed I can on occasions suffer from RLS. Strange as it may seem it is caused by wanting to urinate. Having done so, the RLS goes away. My thoughts are that maybe the pressure on the bladder somehow has a connection with some nerves that relate to the RLS problem. Has anybody had the same situation?

[Hidden]

For what its worth its the Vagus nerve that's involved in urination and does not effect muscles like we have in our legs.

That said as you mentioned a full bladder might be pressing on something else - wish I could sort things out with a pee!

[Angelaanddanny]

I also find if my rls is really bad I need to urinate a lot although only a dribble. I feel it agitates everything including bladder . I also want to eat !

[graciebes]

I found its the same with me , when my legs are bad I go to the loo , and for some reason it does ease my R.L.S

[Bajatom]

Just getting out of bed and doing anything for a few minutes when RLS wakes me will usually ease symptoms when going back to bed.

[LoisTonya in reply to Bajatom]

I find the same. I was up three times in the night doing domestic chore for a quarter of an hour, then got another hour's sleep.

[sticksNstones]

Hello, I am a newbie here at RLS I have just joined and wanted to say hello before I jump right into a question. I have had RLS for several years now but have just noticed a new symptom lately. I have noticed when I sit down on the toilet to pee-urinate before the urine starts to flow I will get RLS really badly in my legs until the urine starts to flow. when the urine starts to flow the RLS disappears. I also do not have any RLS before or after the incident...However, There is a pause before my urine begins.

Weird I know but was wondering if someone else may have experienced this?? Sounds a bit like what @popank, I think.

[Mysticsleep]

I don’t take that Med. But have been having RLS lately. It wakes me up usually with in 2 hours of sleep lately. I have noticed it goes away after I urinate. There may be a strong connection to a nerve in the bladder area and RLS.

[Sympathypains]

I had finally had a year that was fairly symptom free once I found the proper medication. I was taking Restex, basically L-Dopa. The tablet is strong enough to stop the feeling but only lasts one hour or so. I also have a time release I take with it. When I only took the tablet, I would wake after and hour and not be able to sleep until the wee hours of the morning.

About three months ago, it started behaving like the tablet only, except I was taking the capsules too. I thought maybe I was building up a tolerance. I was waking after an hour again, something that hadn't happened in a year or so since I took the tablet only.

Slowly, I realized that I also had to urinate and quite often, something that I never experienced prior. I started a "no liquids after 8 pm/20:00" policy and voila, I no longer have the problem. It does seem to happen early in the morning now, which is new, but that's also a time when I usually urinate.

In my case, it doesn't seem coincidental to getting up to go to the toilet, as it is also resolved from drinking less at night. I believe your intuitions may be correct. I'll be seeing my neurologist next week and will ask him about it.

[Youtellme123]

I am now up for the 3rd time tonight and it's 00.00. I have been taking pramipexol for RLS for around 7 years, and have found I need to urinate everytime. Sometimes it stops it most of the time it doesn't. I walk around, but as soon as I go back to bed within 20 mins or so, it starts up again.

[LotteM in reply to Youtellme123]

Hi youtellme, it is better you start a new post with this question that is hidden in your remark. It sounds like augmentation. And do read the pinned posts about augmentation on the top of the webpage. Or on the rls-uk.org website.

[RLSofManyYears]

I can totally agree that emptying my bladder helps to relieve my symptoms.

[Pennyfarthing]

yes I’m the same. However I have Fowlers Syndrome which is a chronic retention problem and I have a Neuro stimulator in situ so it could be connected to that.

I’m convinced that that and my RLS are connected

[Mustgonow]

Hi popank, I am so pleased to hear that others think there is a connection between needing to urinate helps relieve RLS as I have suggested it to my GP several times and they knew of no connection. Mustgonow