This hurts like hell.: I don't know... - Restless Legs Syn...

Restless Legs Syndrome

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This hurts like hell.

restless1973 profile image
14 Replies

I don't know about anyone else, but if they ever need guinea pigs for a rls cure then ile be top of the list.

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restless1973 profile image
restless1973
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14 Replies
beady3 profile image
beady3

I know just what you are on about. Brings you to tears,havn't you got any codine ,come round. And I will give you some beady 3

restless1973 profile image
restless1973 in reply tobeady3

If you were in the hull area then great. But to be honest, codeine doesn't really do much for it. I rely on ropinorole and two others whos name i can't remember, but if i run out of one of them, then i am stuck :-S

jimeka profile image
jimeka

I will be in the bed next to you. The pain is nauseating sometimes, it's enough with the leg movements without the pain. Hang in there and I too find codeine helps, especially with the pain. Cheers Jimeka

hazelrobson profile image
hazelrobson in reply tojimeka

Yes but codeine makes you constipated!

cicek profile image
cicek in reply tojimeka

And I would be in the next bed to you!!!! I too find codeine helps and a healthy diet stop constipation.

Cats2 profile image
Cats2

Having just been a guinea pig, I wouldn't recommend it. Mine was Mirapex withdrawal - cold turkey - no bridging medicine. Really would like to take the physician who prescribed the protocol into a back alley somewhere and prove to him that what doesn't kill you makes you stronger.

restless1973 profile image
restless1973 in reply toCats2

I would like to take all the medical experts who prodded, poked me and gave me electric shocks and still didn't realise I had rls and wire them to the mains ;-)

Cats2 profile image
Cats2

Geez, you went through all that! Wow, mine was just diagnosed on my description of symptoms and my husband's comment that sleeping in the same room with me was like watching an Olympic event. I agree - hook them up to the mains, but make sure their feet are in water.....just to enhance the experience.

mitziblue profile image
mitziblue

I know sweetheart, I've had it since I was a child. The medicine I take for my Fibromyalgia luckily helps both or I don't know what I'd do. Hope you feel better honey!!! xxx Mitzi

restless1973 profile image
restless1973 in reply tomitziblue

I eventually researched the symptoms myself and made the link between alchohol and the immediate onset of pain. Then put it to my doctor. At one point they thought it were my back and sent me to see a back specialist. So frustrating. I can't even sleep in a bed as that brings on pain, so i sleep on the livingroom floor as the cold surface is more comfy lol.

mitziblue profile image
mitziblue in reply torestless1973

I take Opana ER in case your doctor is willing to give you pain killers. Hope this helps!!! xxx Mitzi

restless1973 profile image
restless1973 in reply tomitziblue

Thank you. Ile keep that name in case i need them. All i can say is thank god for this forum. ;-)

Know me first I'm the fist him line sorry

No I am fist in line sorry

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