Has anyone read this : Restless Legs Syndrome (RLS) -- The Patients' Perspective? What others are saying! Read the 'Comments' as well.

[barried]

forbes.com/sites/johnlamatt...

Please excuse if this article has already been mooted here.

[Hidden]

Yes, i have, and the first article also, which i recommend reading too. But not on this site, it was on another forum. I have my comment on both of the articles. Both of the articles by the author are very good, some one who is on our side.

[Hidden]

yes, ive also read it, good article from a nice guy, someone who believes us, makes a nice change realy.

In the first article that i read, there was a doctor commenting about his "cure" for RLS,, something about nerve decompression !! but in his first paragraph he wrote that RLS is a "media created" illness, so basically he can cure something that he says does not exist !!

[nightdancer in reply to Hidden]

yes, but it was not in the article, it was in the comments under the article that this doctor was pushing his practice. I believe that doctor got the message thru our comments on his comments. He was talking about "vein therapy" for "curing RLS", and RLS has not a thing to do with veins, it is neurological, as we al know. John Mattima, the author, in his first article, was told about RLS by a war veteran who has all kinds of difficulties since he came home with pain and PTSD, etc. But, he told this reporter that RLS was absolutely his worst problem. You can click on John's name at the top of his articles on Forbes, and you will see the rest of his articles. He wrote this article in response to all the comments he got on that first one. It is nice to see, for once, that someone who was initially a skeptic (he only reports on the pharmaceutical industry) cold be convinced how devastating RLS can be to us. Mr. Mattina is my new best friend.

[Hidden]

Hi, i did say it was in the "comments" and not the article, anyone that reads the article would see that.

Also, its plain to see from his comment's that he is taking a chance to plug his "operations", some people have no moral's,!! first he ridicule's RLS then he say's he can cure most case's

But it's certainly nice to see a convert to our cause, is in the guy who wrote the original article, then followed up, with the second article, well done to him. Mr Mattina is most likely all of our best friend

[missteal]

One thing that seems to be missing in all these comments and posts is that RLS isn't always just n the legs. I get it in my arms, pelvis and sometimes even my neck/face too. It is the most annoying out of all my conditions and there isn't a lot of help out there for us RLS'ers. I hope these articles make RLS a better understood problem xx

[nightdancer in reply to missteal]

That was not the point of the article, but you are right, most of us feel it elsewhere than just legs. The point of this article was to prove to the author that what he had been skeptical about, the soldier opened his eyes, and he now is on our side. one more victory for us! Baby steps. There are lots of posts on here about "full body RLS". many of us would like the name to be Restless Limb Disease, but experts that I know personally, say no name change should happen until we find the cause of RLS, which makes total sense.

[Hidden]

Read it. It's a pretty good description of RLS.

The feelings are right on...

My fantasy is to have a nerve block for my legs to

lay still so I can get some sleep.

Not everyone has the "creepy crawly feeling in the legs"

Some people toss and turn trying to find a comfortable

place to put your legs so you can sit, stand, lay down.

I used to describe that as antsy legs that want to move

around all night when I am dead tired.

Keeping my legs still was like holding back a powerful

sneeze, I just have to keep moving them around all night.

[nightdancer in reply to Hidden]

HI, Yikes! I am having nerve blocks done in lower back, and right down my tailbone. Numbing up the sciatic nerve has not made a difference in my back pain or RLS, sadly. Doing this before back surgery. The more my back hurts, the more my RLS acts up. Crossing my fingers. This will be my 3rd back surgery. We numbed the occipital nerve on the left side of my head, and then the surgeon just cut it so it cannot function at all. And what we thought were all migraines, were not, it was nerve pain. Still have migraines, but lots less pain in my head that was blinding. so, that DID help. But the nerve blocks wear off fast. ;(