Patient Experience Research: Explained

[AnnaHU]

youtu.be/IyQ0xtrH64U(Not working as expected?)

Patient experience research is any research activity that seeks to understand the experiences, attitudes and opinions of patients as it relates to their health and interactions with the healthcare system.

Patient experience research is considered “non-interventional”: meaning that no treatment is given and no medical tests are administered. Researchers simply want to hear from patients and caregivers about their true lived experiences and understand their needs.

Our mission is to elevate the patient voice to key decision-makers in the healthcare industry. That’s why we created this community.

By joining the Research Opportunities community, you can join us in our mission. We will use this community to connect to patients and provide you with opportunities to participate in patient experience research through various individual or group discussions, polls, and surveys.

[Moreorless]

Hello Anna

I’m interested in joining the community.

[AnnaHU HealthUnlocked in reply to Moreorless]

Hi Moreless, I am so gald to hear you are happy to join the community. Welcome

[Letsrock]

I am interested in joining.

[AnnaHU HealthUnlocked in reply to Letsrock]

Simply join this community to get access to patient experience research!

[Osha in reply to AnnaHU]

I would be very interested in joining

[Teaching]

That sounds like what I'm interested in joining. I'll like my voice to be heard.

[AnnaHU HealthUnlocked in reply to Teaching]

Glad you are here!

[Sheepysammy in reply to AnnaHU]

Happy to take part as long as my personal Health Records or other information about me is not passed on to any private providers

[faucet]

Hi Anna, I am interested in joining

[AnnaHU HealthUnlocked in reply to faucet]

Welcome to the community! Watch out for new opportunities to take part in patient experience research over the upcoming months.

[stiff19]

I am happy for the research and happy to share my lived experience and needs and interactions with healthcare system if it goes towards improving and elevating the patient voice as much needed for a better healthcare system for both patient and medics

[AnnaHU HealthUnlocked in reply to stiff19]

We look forward to hearing your experiences!

[Bassetmommer]

joined

[butterflyEi]

done

[Grimsbytown]

since being diagnosed with PMR in Aug 2020 I have felt that this condition is the poor relation of other autoimmune conditions & any research will be of benefit to others like me who had never heard of the condition before. Thanks

[Sandydemop]

i'm looking forward to sharing my experience if it will move things along.

[Elliejane]

I am interested in joining,I have forgot the last word, sorry

[mahunamoon]

Hi I see its been a long time since this has been posted, but I feel I have experiences that may help others. thanks.

[SwimLyn]

I am interested in participating in patient research if it can help in any way to minimise the Restless Leg experience suffered by so many of us on this forum.

[Candyben]

Hello Anna I would be interested in joining...

[lowtech]

Too late for us now, but Mental Health NHS Trust ostracised our son (29) over a petiod of 4 yrs before he took his life 3 weeks after we'd asked psychiatrist to work with him and us to get their involvement. All nhs parties lied in complaint response and Inquest & lied to PHSO saying our sons suicide was an Accident. PHSO Behrens said he'd investigate. He said it was fine and my 'expectations' were unreasonable. Or, he lied and didn't bother to investigate these major concerns. Why are all these gpvernment services failing us, our kids, our traumatised families?

I'll just add that now I can't live normal life, need daily medication and have to use private therapy since NHS have breached all trust I assumed was essential in GP and secondary services.