Progressive supranuclear palsy and lightheaded

[Wayne18]

I’ve had psp for almost 4 years and always feel dizzy/lightheaded. Has anyone else experienced this and if so what have you done to resolve issue?

Vertigo , medication, blood pressure and vitamin diffidence has been ruled out.

Any suggestions would be appreciated.

[Kelmisty]

Hi, my Mum has PSP and CBD, unfortunately the light headed and dizziness is all part of her illness we’ve been told. There’s no drugs to help it, and some drugs for other symptoms have made it worse.

Mum said it’s varies on extremity’s but is always there, she finds it very tiring. X

[Wayne18 in reply to Kelmisty]

thank you for your response. Hard to hear and it is difficult to deal with. Wishing your mum the best.

[Sun-flowerwearer]

hello Wayne

Sorry to hear you have the disease. My husband has PSP and one major symptom he complained about from very early on was fuzzy head, feeling dizzy and deceived it as feeling his head was full of cotton wool slowing him down. He couldn’t shift it and I’d say it’s remained with him as a constant for years.

I think it’s a common symptom unfortunately of the illness.

[Wayne18 in reply to Sun-flowerwearer]

Thank you so much for your response.