Tube feeding.

[Robbo1]

My husband opted for a PEG, or PIG, as his type was called. We were provided with liquid food and I was trained how to feed him.

It extended his life by approximately eight months.

Eventually, he still choked on the liquid food , then later, on water , even though they were given through the tube.

Being tube fed, or not, is an individual's choice. If the choice has been made not to have it, that choice has to be respected.

Looking after someone with PSP, is a big learning curve. We always question ourselves as to whether we are doing, or have done, the right thing, but if we have shown love and kindness, whilst caring for our loved ones, then we have done our best.

[Kasenda]

Thank you for sharing. My husband had the PEG tube in 2019 and is still alive today. I agree with you that it should be their choice. No regrets on my part.

[Robbo1 in reply to Kasenda]

Good to hear. Good luck to you both.

[Kasenda in reply to Robbo1]

thank you.

[Mamalou59 in reply to Kasenda]

same here..

[Kasenda in reply to Mamalou59]

thank you.

[melone]

can see the feeding issue coming..no idea how we will