Tube feeding.: My husband opted for a PEG... - PSP Association

PSP Association

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Tube feeding.

Robbo1 profile image
6 Replies

My husband opted for a PEG, or PIG, as his type was called. We were provided with liquid food and I was trained how to feed him.

It extended his life by approximately eight months.

Eventually, he still choked on the liquid food , then later, on water , even though they were given through the tube.

Being tube fed, or not, is an individual's choice. If the choice has been made not to have it, that choice has to be respected.

Looking after someone with PSP, is a big learning curve. We always question ourselves as to whether we are doing, or have done, the right thing, but if we have shown love and kindness, whilst caring for our loved ones, then we have done our best.

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Robbo1 profile image
Robbo1
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6 Replies
Kasenda profile image
Kasenda

Thank you for sharing. My husband had the PEG tube in 2019 and is still alive today. I agree with you that it should be their choice. No regrets on my part.

Robbo1 profile image
Robbo1 in reply toKasenda

Good to hear. Good luck to you both.

Kasenda profile image
Kasenda in reply toRobbo1

thank you.

Mamalou59 profile image
Mamalou59 in reply toKasenda

same here..

Kasenda profile image
Kasenda in reply toMamalou59

thank you.

melone profile image
melone

can see the feeding issue coming..no idea how we will

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