Welcome to the best site ever, would not be able to carry on looking after my husband, without the help and advice from the lovely people on this site. My husband was diagnosed in 2014 xxxx
Hi Althea - we just celebrated our 50th a couple of weeks ago - I haven't been coming on for long yet have learned so much. Stay in touch - lots of caring folks around here Welcome
I don't regard myself as a stalwart person, but with the support and information shared here I have adjusted and got better at caring for my Liz.
It's not easy!
However little by little I learn and get the right care and support in place and even in these days, which were frighteningly dark in our imagination before, we still sher a lot of warmth and love and I would not miss a day of that.
Yes. I bang my head against the wall every few days with the pain and frustration and many tears of loss too. But there is so much good that we still share.
Welcome sorry you have to join us but this is a sanity saving site. I learn so much on here. So much experience shared and handy hints. Oh and everyone gets it unlike the medics we live it!!
Welcome to this site, where you can get all the advice you might need, but especially compassion and listening ears. And you can Aldo cry your heart out , because we will all understand..Bon courage and take good care of yourself too!!
Welcome althea. Hubby gerry has psp. Rediagnosed 4 years ago after early diagnosis of parkinsons 3 years previously. Unfortunately this disease affects everyone around the person who actually has it. Try to plan ahead if you see things happening and get all the aids in place because usually you need them as soon as you get them.
Good luck and keep asking questions as someone on here usually has an answer or a helpful hint. .
Althea-I also am a 73 yr old grandmother.I lost my dear husband of 53 yrs just a week ago to this evil PSP.I turned to this community daily for advice and comfort in his last weeks and don't know what I would have done without it. Blessings,Janet
Althea that is hard to do.If you read the journeys that are posted on this website you will begin to realize that they share a lot of similarities but at the same time all are different.Some patients are incapacitated for long perids of time.In the case of my husband,he was able to walk,talk and eat up until the day he died,but many are not.
I hope and pray for the best for you and your husband-keep reading the posts you find here and ask any question you have as thy arise-you will get help here!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Welcome
Closing Eyes
Biogen/BMS Anti-Tau Phase 2 Trial Recruiting
differences between Lewy Body Dementia and PSP
Power of Attorney and applying for PIP
CBD Clinical Trial
