Physician's Guide to PSP

[Christine47]

youtube.com/watch?v=IXMv919...(Not working as expected?)

This video may also offer some answers to the newly diagnosed.

Christine47

[NannaB]

Very interesting. Thanks for posting.

X

[Craines]

Thank you for posting this - very interesting. Only hope that the professionals see it.

[Tokki]

I wish there was a way of circulating this to every GP surgery in UK and also to relevant hospital departments such as Ophthalmology at one of our local hospitals.

If Bugs had been diagnosed when there were sufficient symptoms to warrant Neurology, Dat scan etc then it would not have made the diagnosis any different but she could have enjoyed 3 years more "normal" life.

[Christine47 in reply to Tokki]

I believe most docs are too busy to view something like this...but I believe they "filter" through their nursing staff and assistants. I would go to one with whom I had established a relationship, tell them what you found, send them the link and maybe they would be able to get to the doctor. Kind of marketing through the back door, so to speak. Since some interviews were conducted with UK docs, I would get to them and see how they distributed the video. Hope this helps.

[psplife]

Thanks for sharing this with us. Im almost glad I didn't know it was PSP until recently. Knowing what I know now about PSP is just devastating. I just can't believe my husband has this disease. Does anyone ever say..."how did this happen to my loved one." I just don't freakin' get it! It's terrible!

NSH