God finally freed my husband of this terrible disease PSP in Oct. I have 2cartns of a really good gelled thickener for liquids. I had

[annielee1]

ordered the thickener but he never wanted any thickening. I was hoping someone could tell me where I could donate this because I don,t think hospitals can accept it.

[Hidden]

Are there any groups that meet near you?

[jimandsharynp]

Where are you located?

[annielee1 in reply to jimandsharynp]

I don't know of any groups near me & don't know how to find out. This is the only group I have ever been on. I am in Dallas, Tx & sure there should be a PSP group here but I do I go about finding them?

[jimandsharynp in reply to annielee1]

Contact CurePSP the USA site for PSP everything. They will know. curepsp.org I believe.

[jimandsharynp]

Contact the "Cure PSP" organization. They are the USA organization for getting PSP in the press and for research for a cure or cause of PSP. Reach them at curepsp.org I believe.

Jimbo

[annielee1 in reply to jimandsharynp]

Jimbo, thanks for the advice. I will get in contact with them today.