I want to wish you all a happy, peaceful & successful New Year in all our trials & battles to get the help that we need & deserve. We can do it together. Thank you all for your help & advice & thanks to the PRDA for giving us such a lifeline in meeting others that are suffering in the same way as ourselves. Only we know how much it means to feel not so alone.
So thank you to everyone & Happy New Year 🥳🥳♥️🫂🫂
Wishing everyone all the very best for the new year ahead, like Maddie_1234 put so well in her post, the PRDA is a lifeline to so many of us that are unfortunately suffering from this debilitating disease. The PRDA provides me with hope that one day things will change for radiation patients of the future. It keeps me optimistic that I might stumble across something new I’ve yet to try & I may in return help someone else in some small way.
Wishing everyone all the very best for the new year. Keep fighting the fight for the answers you need, be proud that you’re part of a unique group of people that have insane amount of inner strength and resilience to live with this day in day out- I don’t reckon there’s a tougher group of people.
Best wishes to you all.
I couldn't have said it better. Cheers to all of us! 💪💪
I was thinking exactly that as I had a 'flare-up' in the middle of a Woodland whilst on a Walk today! I thought to myself, 'Normal people don't have to contend with this shit!' I just did my business and got on with my day, but thought, most people would've been mortified. 🙄 What we have to deal with..... 😳Bloody PRD.
This is exactly me driving to work and pulling over at the side of the motorway, having to do my business with front and back car door for cover 🙃 noone else would do this they are mortified when they find out. PRDA have been such an amazing platform for me to meet others so I am not alone after 18 years of feeling so alone. I now would like PRDA in all radiotherapy clinics so patients understand where they can access support after treatment. Like me living in the North east I never would have found this group if I did not have the job I work in. Thanks to all of you amazing people, we are all so very strong for what we have been through and continue to go through.
Happy new year to everyone !!
Oh goodness…. me too. In the Station car park I thought I’d make it to the loo there, doing my ridiculous funny walk… couldn’t make it. Tried to hide round the car realised just too many houses and people but luckily had had the foresight to wear a pair of pull up Tena’s (oh thank goodness for them) and then spent half an hour in the revolting station loo trying to clean myself up in time to go and have my hair done. .
Really I felt like just getting in the car and driving home crying but I just pulled on my big girl pants (LITERALLY 🤣🤣🤣) and went and got my hair done. My roots thanked me!
But it never stops occurring to me that other people would just not understand! We cope with a lot. But we are still here…
Well done all 👏🏻 😘
Dear maddie_1234
What a lovely post! A very HNY to you too and yes, let’s keep sharing! Knowledge is power and even if one tiny tip helps just one person it’s a win!
Very best wishes to you and all our fellow PRDs on here 🥰 x
Has anyone developed Lichen Sclerosus after pelvic radiotherapy?
New to here but not new to symptoms
What products help you most with your PRD symptoms?
Fatigue - bowel issues
