Flare up?: Now in my 17th year of PMR and still not... - PMRGCAuk

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Flare up?

KCRoyals profile image
35 Replies

Now in my 17th year of PMR and still not sure how to deal with flare ups. At present on 3mg but have a throbbing intermittent pain in right bicep. Is it worth seeing GP or should I just go upto 10mg and see what happens? This disease has no boundaries. 😱

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KCRoyals profile image
KCRoyals
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35 Replies
KCRoyals profile image
KCRoyals

Ooops, just seen this from the wonderful Lady Devon, "Is it a Flare, or is it Steroid Withdrawal? Plus advice on treating a flair" Thx

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toKCRoyals

Was going to link it - and over the border Dorset not Devon -but what’s in a county between friends…😊

Was also going to say, but sure it’s sounds typical PMR if only one sided? So might be worth trying to see GP to get it checked…

KCRoyals profile image
KCRoyals in reply toDorsetLady

Think I'll add 5mg to my 3 for 7/10 days before I see GP. Sorry about the County error, still it could be worse, that is calling me a Lancastrian. 😨😡

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toKCRoyals

We don’t have those sort of feuds in Dorset -maybe Devon v Cornwall in how to eat your scones!! 🤣😂

KCRoyals profile image
KCRoyals in reply toDorsetLady

Must admit does my head in when scones are pronounced S-cons rather than S-cones. 😆

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toKCRoyals

That’s another can of worms… 🤦🏻‍♀️

Bcol profile image
Bcol in reply toDorsetLady

Jam or cream first?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Depends which side of border😳.. me jam first… with probably too big a dollop of cream… 🤦🏻‍♀️

Bcol profile image
Bcol in reply toDorsetLady

That's my way as well.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Good man!

Chris_1236 profile image
Chris_1236 in reply toDorsetLady

Love scones! My wonderful wife made me some delicious cranberry white chocolate scones for breakfast. I may be a heretic, but I dispensed with the jam, etc. and just ate them as-is with coffee. 😋

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toChris_1236

I like fruit ones as well -with just butter..

Not keen on cheese ones, even though I’m a cheese fan!

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Cheese is better as a slice on top of the jam and under the cream ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

That must be a "northern thing"! like cheese and Christmas Cake.. although I have been known to partake.. 😜

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Even better on a mincepie - good chunk of mature Cheddar ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Yes agree with that..,

Bcol profile image
Bcol in reply toDorsetLady

Never really gone with that, probably part of my southern upbringing. Brandy butter would work!

PMRpro profile image
PMRproAmbassador in reply toBcol

Well obviously you need BOTH cheese and brandy butter! Wensleydale with cranberries is rather good if you can get it but I can't now.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Wish you’d stop talking about all the things I like 😊….

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Why????? A girl can dream ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

Fair enough….

Bcol profile image
Bcol in reply toPMRpro

Have to say, that does sound good.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toBcol

Agree with that as well….

Bcol profile image
Bcol in reply toDorsetLady

Fruit ones with butter oh yes, not bad with cream either.

PMRpro profile image
PMRproAmbassador in reply toChris_1236

Where're ours????

Chris_1236 profile image
Chris_1236 in reply toPMRpro

Oops! 😳

I'd box some up and send them to you, but I'm not sure they would survive the hop across the pond. 😄

PMRpro profile image
PMRproAmbassador in reply toChris_1236

When someone works out how to email food it will be a great benefit to humankind ... :)

Bcol profile image
Bcol in reply toPMRpro

Amazon Drone delivery????

PMRpro profile image
PMRproAmbassador in reply toBcol

Bit far for me ...

PMRpro profile image
PMRproAmbassador in reply toBcol

Definitely jam - so the cream sticks to it ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

👍

Charlie1boy profile image
Charlie1boy in reply toKCRoyals

Especially if you are from Yorkshire!!!

SnazzyD profile image
SnazzyD

Did it come on after a particular activity? The fact that it is very specific, one sided and throbbing says to me it might not be PMR.

KCRoyals profile image
KCRoyals in reply toSnazzyD

Hi, when I have had flare ups in past it has always been the right side, even when I first had it. If the increased Pred doesn't do anything I'll head for the doctor.

PMRpro profile image
PMRproAmbassador

I'm now on Actemra/tocilizumab as the only way of getting down from 19mg pred (after 20+ years of PMR and 16 of pred) but I still need 7mg of pred. If I try 6mg, after about 3 weeks I develop very uncomfortable bicep pain which also stops me twisting my forearms which eventually makes using my arms almost impossible. Mine is bilateral but my dominant arm develops it faster. A few days of 10mg pred and back to 7mg, all sorted. As the rheumy nurses said this morning, being unable to lift a glass of wine is DEFINITELY not acceptable. And my rheumy is fine about it.

Then of course, in Scotland Scone is pronounced Scoon - but that is a place ... Or farls. And HMQ called them scons.

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