Up and down again

[Lovesport]

I am new to this forum but not to PMR having been diagnosed after a very scary 3 months in March 2022. Relief from pred was pretty instant and then I followed the normal pattern of coming down. I was free of all drugs for 5 months when I caught Covid in Australia and had a relapse. I had to go up to 20 mg to get symptoms back under control which was quite lowering. I really thought I had beaten it,

Now coming down again onto 7 mg and feel ever so dizzy but not really pain. Just wondering if the dizziness is a thing.

so many thanks for all the advice I’ve gotten through this forum. Truly life changing,

[DorsetLady PMRGCAuk volunteer]

If the dizziness is recent then it maybe due to adrenals- they need to start working again at around the dose you are at now.

However, if you've had it all along could be due to the Pred.

Just a comment - if you were first diagnosed in 2022, doubt your PMR had actually gone when you finished Pred. 5 months later sounds quite usual for it to raise it's head above the parapet with or without Covid. So maybe just make sure this time around... so reduce more slowly.

[PMRpro Ambassador]

Like DL, I'd suspect adrenals not keeping up with the reducing dose of pred.

And like DL - your PMR hadn't gone away but the Covid kicked it right royally into life again. You don't beat PMR - you come to an accommodation with it and walk together. Don't waste energy fighting!!!!