Zero Pred Zone update 2: Following on from my two... - PMRGCAuk

PMRGCAuk

21,022 members39,679 posts

Zero Pred Zone update 2

Queenie1901 profile image
3 Replies

Following on from my two previous posts DL asked for an update after my review with GP. I submitted the eConsult requesting a review and had to wait over 3 weeks for an appointment. Meanwhile I carried on with the increase by 5mg for 5 days, 3 mg for 5 days then 1mg and stopped there. Wrist pains masked at 5mg and 3mg but aware once again at 1mg. At review GP looked at my swollen wrist, finger and knee joints as well as discussion of my taper and lack of other typical PMR symptoms and concluded this was more likely not PMR but age and activity related wear and tear, which were masked at the increase by 5mg. Remaining on 1mg has not seen any worsening or new symptoms.

Written by
Queenie1901 profile image
Queenie1901
To view profiles and participate in discussions please or .
3 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Thanks for this.

I know RA was mentioned in previous posts - have you been tested for that or not? As you know the signs with your DIL do you think it could be that?

If 1mg is helping, even a little, then I’d be inclined to stick with that.

Queenie1901 profile image
Queenie1901 in reply to DorsetLady

Hello again. Yes we discussed RA and GP did not think it was that although no tests to be arranged. My DIL had much worse symptoms with severe pain, poor mobility and excessive fatigue. I have none of these. I have no plan to taper at the moment. Just watching what happens, if anything, next. Oh, and trying to resist gardening with any vigour!

PMRpro profile image
PMRproAmbassador

Hope it stablises!

Not what you're looking for?

You may also like...

Club Zero membership has expired

Hi Folks It turns out my post of 12 days ago was rather premature. Today I have been diagnosed with...

PMR symptoms after 2 months of zero prednisone

Hello. I’ve had GCA/PMR for 4 years exactly, with a few flares in that time. When those flare...

Update.

I contacted this forum, for the first time, just over 4 months ago as I had reduced my steroids...

bladder control

Has anyone else experienced a loss of bladder control while on prednisone. I've had PMR for about...

Update on project Zero Pred

Here's link to the thread from several months ago. As of today (19.02.24) I've had no pred since...