anyone trying to get of Tylonol 3

[Yogikay]

I was prescribed Tylonol 3 two tablets every four hours!!!

Because the Family doctor will not agree that my PMR is back?

I had five prednisone tablets in my medicine closet had five days of bliss no lain, BUT absolute hell as I stopped the Tylonol,

My GP won’t give me prednisone just keeps telling me to take more tablets for the pain. Go figure???

A warning from me it’s very very difficult to get off the pain tablets.

[PMRpro Ambassador]

It is beyond me what makes any doctor think that long term Tylenol 3/cocodamol (paracetamol/acetimophen plus codeine) is safer than a low dose of pred. It is addictive - at the very least the body develops a tolerance for it so you need increasing doses. It is also a medication that should be avoided in the over 75s as the metabolites are more dangerous for them.

Is there no option for a different doctor? I know the situation in Canada is bad ...

[Yogikay in reply to PMRpro]

Thanks fir support.’

Getting a new doctor is a total nightmare.

I have to somehow get this guy onboard and educated.

Having used 7 tablets of 5mg and seven days of bliss no pain, but then had withdrawal symptoms from no Tylonol !!!

Twitching stifling and nit able yo sleep for three nights.

Have resorted to tapering off the Tylonol 3 slowly and nit use it.

Just sincerely hope I get some doctor to hear my cries.

ER is my next move if no luck.

Thanks for response,

Karin

[SheffieldJane]

I agree totally with PMRPro. You must be in agony. You really need a qualified second opinion. Please explore the options. Could an emergency room in the hospital sort this awful situation out?

[Pollyanna16]

I’m so sorry you are having to deal with this 🫤

[PMRCanada]

I know wait times can be long in ER depts all across the country. Some folks wait till the wee hours in the morning on a weeknight to go as it is often less busy.

As far as your doctor refusing to give you pred because your bloodwork was “normal” , he (or someone else) did before when you were first diagnosed (despite having normal markers). If you disclosed that you took leftover 5mg pred daily for a few days and had relief, is that not proof that it is helpful/necessary? T3s seem to have caused some issues when trying to stop them….surely that would sway him to swap out his medication suggestions.

How long has it been since your last prescription? Did you taper down to “0”?

Hope someone listens to you and you get a satisfactory response that brings some relief.

[PMRpro Ambassador in reply to PMRCanada]

"Some folks wait till the wee hours in the morning on a weeknight to go as it is often less busy."

According to ED staff I know, that is a mistaken belief - there are fewer staff on anyway. Plus no access to consultants for specific complaints - like GCA.

[Yogikay in reply to PMRCanada]

I finally went to ER I couldn’t get out of bed needed to use crutches to walk.

ER say we don’t know what’s wrong so will accept previous diagnosis from a rheumatologist and give you Prednisone.

Have 10mg per day until I see family doctor in 5 days.

Are any of you on higher dose as the 10mg just covers the ice berg of body aches.

I have a suspicion it’s Tylonol withdrawal that I am coping with. I stopped tylonol 3 immediately after starting prednisone!

Anyone out there suggestions or ideas.

Thanks

[PMRpro Ambassador in reply to Yogikay]

But does the 10mg help to some extent? And I presume you finished your stash of pred?