What to expect from your rheumatologist - PMRGCAuk

PMRGCAuk

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What to expect from your rheumatologist

123-go profile image
9 Replies

This is fitting for anyone with a chronic disease:

creakyjoints.org/doctor-pat...

Sorry folks- the link isn't working: will try again🙁.

Ok now.

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123-go profile image
123-go
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9 Replies
PMRpro profile image
PMRproAmbassador

Unfortunately, brilliant as Creaky is, this applies to the USA. You get stuck at the first hurdle in the UK ...

123-go profile image
123-go in reply to PMRpro

I know and of course the health system there has its many problems. Doesn't hurt to aim high, though 😉.

PMRpro profile image
PMRproAmbassador in reply to 123-go

Once you have discovered the person you were referred to is less than ideal, you have lost the freedom to choose for your first referral. The alternative is to go privately - and that is no guarantee you will get someone any better without advice from here. The only guarantee is your pocket will be lighter! In Scotland you can't choose at any stage unless you go private, And in Wales - first, find a rheumy!!!!

Cantfindanam profile image
Cantfindanam in reply to PMRpro

I live in Wales and have been seeing A Rheumatologist for nearly 2 years no problem!!!!!

PMRpro profile image
PMRproAmbassador in reply to Cantfindanam

Then you are a very lucky person - where do you live? Near Cardiff? If you live in rural west Wales you can struggle.

Cantfindanam profile image
Cantfindanam in reply to Cantfindanam

Only actually see in person every 4 to 5 months the Rheumatologist but have contact with nurses regularly by phone who are very supportive and helpful. I have been asked to take part in research into GCA which starts next week .

123-go profile image
123-go

All true. Add Northern Ireland into the mix where the people are in unimaginable dire straits.

Theziggy profile image
Theziggy in reply to 123-go

You are not wrong - I'm in Northern Ireland

123-go profile image
123-go in reply to Theziggy

😔💐

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