I can see that all of you in the UK are also having a heatwave. I have 30 celsius here, and I think it is making the PMR symptoms worse! I did live in India for a few years, but now my body seems to not tolerate the heat?
Heatwave and PMR how are you doing?: I can see that... - PMRGCAuk
Heatwave and PMR how are you doing?
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krillemy
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Sweltering! Anything I sit or lie on gets roasting hot. I am shifting around on the floor at the moment. My hips don't like that all.
Hoping the heat will leave my area soon.
If I got to that stage I'd take a chair and the kindle down to the underground garage! My bathrooms (inside, no windows) are also a pleasant temperature.
I have a basement but nothing comfortable down there. Also got a broken loo which I have to flush with a bucket until the part is delivered. There is rain on the radar. Hope it arrives.
Nowt comfortable in mine either!!! I'd need my camping chair! But it is cool - probably well under 20C
Basement is 25 °.
I'm going by what the car thermometer says when I go down there.
Hard to get an official temperature because the Met Office doesn't have a weather station here. At least our houses are not burning like on the estate just outside London.
Horrendous that isn't it. Our village has a weather station and they publish the readings in the monthly magazine - there is one for the town - not in town but out on the edge of a very open industrial estate - and that is online, updated every 20mins.
Network Rail just claiming you can set up railways to work OK from (say) -10C to +35C and that's why the UK is struggling. Sorry mate - ours work below -10C and have to work up to above 35C ...
I used to be a commuter. They had very inventive excuses for the service failing.
Mostly associated with "the wrong sort of ..."
Wrong sort of leaves on the line!!
Well, they’ll be dry as a cinder, not wet as usual! So likely to catch fire!
Love it......
Just been texting son - in London yesterday 42c, 4Ic this morning, tonight in Holland 40c…same time as messangering daughter in NZ, pouring down with rain, and flooding - has a load of snow last week…out checking soaking wet sheep…
A day of two halves……😊
If only we could send u the rain from NZ ! We r having Brit weather this year . I had to laugh about our news tonight . They put your last last three hot summer stats on . 1976 was your first great summer ! I was there in 1976 . I could never understand why the southern hemisphere always made jokes about Brit weather because it was great when I was there . Little did I know it that it was such an out of the ordinary summer till tonight 😂🤣😅
Well ours is very similar temperature wise to yours (certainly on the South Island ) - the further you get up on the North Island the more Mediterranean it becomes.
Islands as well - so very changeable -and as the predominant wind is across the Atlantic it’s brings plenty of the wet stuff!
..and seemingly we all like to talk about it! 😊
Remember when they started talking about global warming and they were saying that the UK would get weather like the mediterranean? Got it haven't they - wildfires were a major feature of our holidays in the south of France 40-odd years ago. Camping on the coast and watching the planes picking up water for the fires around Draguignan ...
I think it was statements like that that made people so sceptical about climate change - it would be an improvement on normal UK weather ...
Yes, a case of “be careful what you wish for” …. ..trouble is, nothing’s been done to adapt the infrastructure to cope with the “new normal” (now where have I heard that phrase before?) 😳
Where do you live DorsetLady?
South Dorset, UK -about 8 miles from coast .
Of course!
Confused you by mentioning Holland -that was in relation to my son -for work… 😊
The east coast of Australia has had about 7 months of almost constant rain, no summer or beautiful autumn and now a cold wet winter. The drought arrived and lasted a week, now back to cold and wet. Mould everywhere I look in the house. I hate to complain but I’m over it! Sunny Australia it is not, at least not on this side of the continent. Feel good now that I have had a whinge. 😊🌻🌻
Yes, you have had it rough haven’t you..and never apologise for having a whinge! 😉
And it keeps blowin our way Meggsy . Mood lighting inside , like Scandinavian countries!
Saw the sun today - OH said “Quick, get the camera!”
India has very good trains. I have travelled on one. It looked ancient but worked perfectly well ... and provided a free cooked meal and drinks.
I think they mean that's what they 'are' set up for. It's probably the same for much of our infrastructure because it probably wouldn't have been cost effective to set it up for higher temperatures that seemed highly unlikely at the time. This is why the Stern report said that in the longer time it would be cheaper to take steps to reduce carbon emissions then than it would to deal with the effects in the future. Unfortunately nobody took any notice.
The article mentioned Greece - often much hotter but the trains run, But most of the time they don't have very cold to deal with, everything is set higher - but my point is that where I live we have all temps to cope with over the year.
Shocked to see how brown Brit grass is on the news tonight . Brown as Oz . U need rain !
My shower room is really cool but can't sleep there! Upstairs is a furnace.
My builder slept on an airbed under a gazebo in his garden last night. We’re 15 degrees cooler today with a nice breeze. Still too hot to do housework though!! Currently 23. Thank goodness it’s passed….
You have to put comfy cushions or yoga mats on the floor . It is the coolest place! Stayed at 45 degree temps for 2 weeks (in Oz) . A new lesson on why the Aborigines had such a laid back lifestyle for centuries .
Pillows in my case. Hope you have air con there. My hottest experience was working in Kuwait in August. That is the month where they run away to Europe to escape. It was 50° and probably more because outdoor workers had to stop over 50° so they didn't admit to it. Great air con but like a furnace outdoors.
In the good old days in Oz we didn’t have to work once temp hit 100degrees Fahrenheit ! Where has common sense gone ?
There isn't any upper limit in the UK.
Shocked to see the royal guards still in their jackets and buzbies (not sure how to spell that )
Busby. I am not surprised. They have to Troop the Colour for hours in full uniform. They frequently faint.
Proper name bearskins. Full Dress uniform -MOD still in 18th century.
They probably lost more men through heatstroke than enemies on the battlefield in days of yore -just look at pictures of India, Africa and Peninsula wars.. have adapted a bit since then -by tradition remains on ceremonial occasions.
My granddaughter went to London last weekend. (Why??)....she was worried that one of the royal guards sitting on his horse would faint...but he had someone keep regularly give him water...
There used to be in 1976 - don’t know if it’s the same now….Unions were big then - we stopped working several times when Temp went over a certain degree!
No there isn’t an upper limit -was a discussion on radio last week…
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A not entirely unpleasant 34C here today in South Tirol - can't say it is making the PMR worse but I wouldn't like to have to do too much! Are you dehydrated?
I am very hydrated but as you now already having flair. I took 5 mg extra at 1 PM and away went nausea and pounding heart and pain. So I dont know 
My hoppy thrives in the heat - it is ok now with a wind -- I live in a flat so I have no basement, but am near the sea!
I live in a flat - but we have an underground garage!!!!
The 5 mg ekstra in the afternoon did it. I slept through the night. Woke at 4.30 AM took 15, and slept until 7.30! Today I am so well. Thanks. I guess I need the extra due to stressful family situation (I am sorry your former situation), a big burn under my foot and a diverticulitis flair that takes it´s time this way around. But guess what - they just postponed my OR for 6 months - no nurses they said ...... I am ok with it as they want of pred. and that is not happening right now
I'm in Devon on holiday and been a cool 25⁰C here...unlike back home in Essex, where it apparently maxed out at 38⁰C accordingtomy neighbour!! Guess all my lovely flowers will be dead when I get home. ☹️
The heat definitely makes me more fatigued and feel weaker.
Have a nighbourgh water the flowers? But that is what I get fatigue and weak. Even a dip in the sea here in Copenhagen, only gave relief for an hour. 37 degrees tomorrow - that is hot
My neighbour has been but is unfortunately away for a few days herself now!
Sadly its not just water - the ferocious heat has killed/burnt some of my lovely plants despite me watering well in the evenings 😔
It was exceedingly hot here in Essex, it was impossible to sleep last night. You definitely chose the right time to be away.
I love my home in Essex and the fact I have a meadow and a river outside my front door, but being in a slight dip means the hot air doesn't seem to rise as would be the norm....it seems to get trapped! I would definitely have struggled more with the PMR had I been at home but here in Devon it's been manageable...particularly at night time.
Wasn’t it just Helipad. I’m in Essex on the Kent border. The houses that caught fire are just up the road from us. Very scary. Those poor people. And most of my plants are droopy and some dead despite being watered frequently.
I've really found it hard today, but hubby put wet towels around my neck and legs and sat me in front of the fan. It worked wonders.
Hi krillemy, I’ve found the heat has kind of an indirect effect on my PMR. I’ve moved much less, following advice to ‘do as little as you can’ because of the high temperatures - so I’ve stayed relatively cool, but have found I’ve really stiffened up - especially in the shoulder and wrist on the side where I hold my iPad! If it’s not one thing it’s another…..🤷♀️X
And my poor menopausal chiropodist came yesterday and was pouring with sweat and inside her gloves. I sat there cool as a cucumber 🥒
Yes very very hot flashes at least I can blame it on the heat.
34 in the shade 😔
Longtimer• in reply to
82 deg in my hallway!........thunderstorms threatened for tomorrow.....we need the drop in temperature, and rain, but don't like lightening.........last house was struck!
We had a storm this afternoon for about 30-45 mins, lightning and thunder very close….seem to rumble on fir ages…but definitely but cooler afterwards. According to local weather a flood alert for later in the week!
That must have been very scary and not something any of us would want to experience....particularly if at the stage of tapering pred where adrenals are trying to fire up again!!!
Our central heating boiler was behind the gas fire, as they were in the 80`s, while we were out one evening it caught fire....we always used to shut all doors, so it burnt out the lounge only...(fireman praised us for that)...two weeks later the house was struck by lightening while I was in it on my own.....several weeks later I wasn`t well.....not PMR but never felt well after that.......then my mother dying of cancer...late 80`s early 90`s not good....but some things like lightening make me edgy.....but at least it`s getting cooler.....and like you hoping for the best!...
So sorry to hear that. What a lot of 'trauma' to deal with. Somehow you came through it all though and that in itself is admirable and an achievement.
When I tapered out completely, did some yoga stuff for stimulating the adrenal, and watched horror pictures on Netflix (I normally dont) - training the adrenals 😂
I did very little yesterday when it reached 40C !!!! It was till 35C at 8.30 last night. I think allowing myself a really lazy day helped my PMR as I didn't feel too bad. I hope you are OK.
Been a bit late to the heat party here, but car thermometer read 36.5 on way to funeral yesterday. The heat makes me stiffer, too but not sure why. Some thunder in the night but only 5 mins of pretend rain. Feel utterly drained today.
I went to a funeral as well. Had to sit upstairs in the chapel and boy it was hot! Today I don’t feel good but have an appt to see my rheumy today so have to go out.
Silly me krillemy, after reading this illness was more common in the Northern hemisphere, I thought living in the heat would be better.x
Yes - I guess it does not work that way around!! 😆😆
We went searching for air conditioning yesterday. An hour in Waitrose’s cafe with a coffee and cake then a trip to the cinema last night to see the new Minions film. Bliss 🥶🥶
Yesterday in our village near Oxford it was 40C. We tried getting up that morning at 6am and opening all the windows for an hour to cool the house then shutting up everything, closing curtains etc. Our poor cats just looked miserable and we absconded to our son's house in Thame where the aircon was set at 22C - oh! the bliss of sleeping and needing a light duvet, outside felt like an oven. We arrived back to have 30C sealed into our house and two cats sleeping under the jasmine hedge. Flung windows open... feel exhausted, realised I hadn't taken Pred for a day.
Interestingly, the heat (40 degrees in Leeds yesterday) has forced me to barely move and just sit and read, do jigsaws etc as even to hot for my brain. But enforced idleness seems to have done me good, I'm sure I'm more mobile and less stiff than usual for pacing and not overdoing things. Might make 'down tools and just stop' a regular therapy!
Hi My PMR is no worse but Im finding it hard breathing in this heat . Dont know if the pred exacerbates that
I found yesterday really difficult to deal with! 39 in potters bar. Couldn’t function at all. Thankful today better. Upped pred yesterday by a half but made no difference. Wet scarves draped round neck and knees and feet!! What a sight!!! Homeopath visited today.. helping with side effects of pred! Don’t all shout at once!!!!
Ps. I took my dogs collar off yesterday in that heat! Can’t find it anywhere!!! Brain fog! Thought you’d all be interested!!!!!
have you checked you haven't got it on!😲 so long as you don't misplace dog...
Am afraid it wouldn’t go round my waist!!! And too hot round the neck!!
Hello , from Evenley near Oxford UK , 38 degrees here yesterday 🥵 I do think the Heat has added to our PMR inflammation- I felt Shivery I was so Hot ! Also being overweight there only soo much Body one dare remove Clothes from ! Don’t want to scare our Postman 😂 Take care everyone , leave any non essential Chores 🙏 x
Yes am sure you’re right. Legs feel as heavy as lead ! Am going to acupuncturist this evening? Mad or what!!!?!?
❤️ Good Luck with Acupuncturist Chap - I quite like the Herbal Tea prescriptions they offer - But we cannot have Liquorice with Steroids I think - Take care dear 🙏
Postman….think he had enough problems……😂🤣
Yes ! He’s a great Chap , don’t want lose him ❤️
I closed all the curtains and spent the heatwave stark naked. I had only myself to shock.
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