when to stop taking AA: Been taking AA for... - PMRGCAuk

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when to stop taking AA

Harrywogan profile image
12 Replies

Been taking AA for 4years and thought I'd just stop as ive heard its only to be taken for 5years any advice

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Harrywogan profile image
Harrywogan
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12 Replies
SheffieldJane profile image
SheffieldJane

One for your prescribing doctor I think. It will have done its job. Glad you tolerated it. It is a drug that alarms me from a number of angles. I am a wuss!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I stopped at around 4 year mark but did discuss with GP -he agreed probably long enough -and was on very low doses of Pred by then anyway

Charlie1boy profile image
Charlie1boy

My GP allowed me to come off when I got down to seven mg. Think it very much depends on the person as we are all so different.Good luck

Paddy

PMRpro profile image
PMRproAmbassador

Talk to your doctor - preferably the one who put you on it in the first place.

paintpots profile image
paintpots

I took myself off it after 3 years and down to 3mg of pred. I actually found it a pain having to take it once a week early morning and sitting up or standing for 1/2 hour.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply topaintpots

Really? It’s only 1/2hr..I had a shower and then sat and read emails..not exactly onerous 😊

Harrywogan profile image
Harrywogan in reply topaintpots

Me to paint pots.

Thelmarina profile image
Thelmarina

I stopped after five years, had a dexa scan and now have osteoporosis so was put back on it. However when I get lower (7.5 at the moment) I shall discuss it once more with my rheumatologist.

Thelmarina profile image
Thelmarina

Ps I’m on Ibandronic acid which is taken monthly - couldn’t cope with weekly dosage 😀

Exflex profile image
Exflex

When I asked one of the two GPs at the surgery she asked a Rheumatologist (I’ve been discharged back into GP care over 12 months ago). At the time of asking I was probably on 4mg. I was told to stay on Risedronate until the bitter end, ie for as long as I take Pred.More recently I had consulted for another health issue and the second GP at the practice said to me anything below 5mg doesn’t cause long term damage. I forgot to ask him about bone depletion.

I hate taking it but I’m resigned to the fact and it’s an incentive to ween myself off Prednisolone. (I’m currently on 3mg Pred.)

Harrywogan profile image
Harrywogan in reply toExflex

Thanks Exflex will speak to gp about the AA. you say currently on 3mg how slow you coming down .

Exflex profile image
Exflex in reply toHarrywogan

I’m reducing at the rate of 0.5mg every 5 weeks (nominally, that is, I paused whilst suffering from Covid, and actually went up but then straight down again). I’m using Dorset Lady’s simple tapering plan.

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