Long COVID

[YuliK]

Two weeks ago I was admitted with long Covid to hospital after collapsing on my lounge floor

I thought it may be interesting for some of my fellow PMRers to read it.

Long COVID seems to affect mostly comprised immune suffers.

My home tests are still coming up positive after 14 days. ( my doctor assured me that it is only contagious until 5-6 days)

So here i am , with quite a few side effects.

Im lucky that my GP has just got back on her feet herself. So at least I have empathy and full understanding.

OK folks, back to my bed for another nap.

YuliK ❤️

news.harvard.edu/gazette/st...

[MrsNails]

Get Well Soon YuliK ❤️‍🩹

[PMRpro Ambassador]

Oh boo!!! When did you start with Covid - can't remember! Get well soon!

I think the statement it is mainly immunocompromised people is incorrect though - many formerly perfectly healthy people have Long Covid.

[YuliK in reply to PMRpro]

Thanks Eileen.

About time people take more care with themselves.

I knew, being PMR compromised it would be a struggle to get back on my feet.

Flying around the globe certainly is not a good time at the moment.

Keep well love.

YuliK ❤️❤️

[tangocharlie]

I've had Covid now for 19 days, but at this stage I don't know if it's long covid or just a long time to have Covid. The fatigue is random and debilitating but apart from that symptoms are mild. I think in he UK doctors are more aware of the possibility of Long Covid, some hospitals like mine even have a Long Covid specialist for the numbers of cases. I don't thnk we know yet whether long covid is linked to other conditions, but there are certainly overlaps. I do wonder whether people are being offered steroids for it, they migh well help as they certainly help with my PMR fatigue

[YuliK in reply to tangocharlie]

TC

Poor girl having covid for 19 days. It’s not easy.

My symptoms are very hard. I cough and wheeze can’t get out of bed without a terrible struggle. My back, hip and back of head hurt.

This together with PMR is a struggle.

YuliK 🌸🌷

[tangocharlie in reply to YuliK]

Sounds horrible Yulik. I was advised to stop the methtrexate for a couple of weeks and tried to reduce the Pred just by 1mg, but even that 1mg made such a difference and the stiffness hit in the next day. I persisted for 3 days then have upped the Pred again and feel much better, less stiffness and fatigue. So I guess what I'm thinking is that although doctors tell us to reduce the Pred to fight the virus, if our bodies still need that dose to control the PMR then we can't actually reduce? I've put this to my rheumatologist to think about. I remember in the early days of Covid doctors panicked and got people off even low doses of Pred that they'd been on for years and they had flares and relapses, we had a few cases on the helpline at the time.

[PMRpro Ambassador in reply to tangocharlie]

Long Covid is defined as more than 8-12 weeks depending on the expert. Some of them are "just" the virus having triggered an a/i disorder which could have happened anyway but the effect is the same: long term illness ...

[SheffieldJane]

Thank you YuliK, sorry that you are suffering this. 🌷

[Viv54]

OH dear ! take it slowly and get well soon x🌷