Tapering is going well.

Managed to lower prednisolone to 0.5mg and no original symptoms of PMR. So far so good 😊

Best wishes to all the members.

[SheffieldJane]

Fingers crossed! 🤞

[Hidden in reply to SheffieldJane]

Hopefully 🙏🏼

[Seacat30]

Well done!

[Hidden in reply to Seacat30]

Thanks.

[DorsetLady PMRGCAuk volunteer]

Good 👍

[Hidden in reply to DorsetLady]

Hopefully on the right path nevertheless it will be anxious moments when I do come off prednisolone.

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

Yes it does take some time to get the body back to normal …and hopefully disease gone into remission.

[PMRpro Ambassador]

Hope it keeps on going!! But never forget - even 1/2 mg can be enough so ca canny - no hurry!!!!!

[Hidden in reply to PMRpro]

Have been on 0.5mg since the 25th of June 2022. I will continue on this dose till the 23rd of July 2022 ( 1 month) .The question is should stop taking prednisolone thereafter and see what happens?

[DorsetLady PMRGCAuk volunteer in reply to Hidden]

You could use one of the slow tapers to get down to zero -I used my version (linked) - there are others -rather than just stop overnight… gives the body a bit more time to adjust.

healthunlocked.com/pmrgcauk...

[Hidden in reply to DorsetLady]

Greatly appreciated the advice and many thanks

[PMRpro Ambassador in reply to Hidden]

I wouldn't. I would at the very least do 1/2 to zero as a perfectly normal slow taper. Bit I would do another month or two at 1/2mg and that last step I would do even more slowly - repeating each step for example. You wouldn't be the first to discover that 1/2mg was doing something - it is SUCH a low dose it is doing nothing bad but it MAY be doing something good.

[Hidden in reply to PMRpro]

Being an amateur with this medical condition, I will take the advice from the experts like yourself, DorsetLady and others in the health forum and continue with the 0.5 mg for sometime. It’s better not to rush to going to zero and face the consequences of starting all over again. Thanks

[PMRpro Ambassador in reply to Hidden]

Look at it as a talisman!! Prof Dasgupta admitted he often keeps patients at 2 to 3mg to reduce the risk of relapses - I think that is pessimistic, i think a lot of patients will get lower even if they don't get off entirely.

[MiloCollie]

Great advice. You’re so close to zero now so don’t rush it but good luck.

[Hidden in reply to MiloCollie]

Thanks MiloCollie. Take care and best wishes