B12: Have reduced to 4mg but fatigue seems to be a... - PMRGCAuk

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B12

Nanny71 profile image
8 Replies

Have reduced to 4mg but fatigue seems to be a problem . No aches and pains though.Has anyone tried B12 and is it ok with Predlisone

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Nanny71
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8 Replies
SnazzyD profile image
SnazzyD

It is common for people to feel fatigued at this stage which can come as a disappointment because in our heads, low dose = back to life. If your adrenal glands are not yet coming back on line, as many people’s don’t at this stage, you can feel pretty useless. It took many months for mine to sputter back into life. Have a read of these posts found on FAQ’shealthunlocked.com/pmrgcauk...

As for B12, I would get a blood test for it rather than supplementing blind. Firstly it may not be the problem and secondly some people are low in it because they can’t absorb it and need injections, not by mouth.

Nanny71 profile image
Nanny71 in reply to SnazzyD

Thank you .

PMRpro profile image
PMRproAmbassador

The fatigue at this level of pred is almost certainly poor adrenal function and not catching up with the reduction in pred dose as Snazzy explains. And as she also says - get your B12 checked first, too much is also not good. But dietary supplementation is fine - are you a Marmite person? Not that that helps in the event you aren't absorbing it.

Nanny71 profile image
Nanny71 in reply to PMRpro

Thanks for your help . Have booked blood test as advised.

piglette profile image
piglette

Fatigue at lower doses is an absolute killer. I found it tiring opening my eyes. I was told not to increase as you have to go it through it again, although I did go from 5mg to 6mg which did help. It is a matter of time to get the adrenal glands back into action.

Nanny71 profile image
Nanny71 in reply to piglette

Thank you so much for your reply. Would just love to feel normal again.

piglette profile image
piglette in reply to Nanny71

It just takes time, relax and pamper yourself!

Nanny71 profile image
Nanny71 in reply to piglette

Will do and thank you again

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