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[Blondegirl36]

Hi i have myleofibrosis since 2016.i am 40 years old.and i am female with two kids.can anybody say this disaese uncueable please help me ?

[PMRpro Ambassador]

I'm afraid this forum can'treally help you with any information as it is specifically for polymyalgia rheumatica and giant cell arteritis - forms of vasculitis and nothing to do with any form of cancer.

I really don't know what forum would be appropriate I'm afraid.

[DorsetLady PMRGCAuk volunteer]

Very sorry to hear that, but think you need a cancer forum not this one…..

Tap the My Hub option on top banner - that will list any community you have joined, but also gives you option to find others…it may say… “+view your communities” if it does select that and it will change to ‘Find a community’. Then type in myleofibrosis or cancer - should then give you options.

[piglette]

You could try the Leukaemia and Lymphoma Society lls.org/myeloproliferative-...

[Heather270240]

It is the MPN forum you need where you will be given lots of help and support. Or go to BloodCancer.org.uk. Good Luck.