Polymyalgia flaring up: My polymyalgia condition... - PMRGCAuk

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Polymyalgia flaring up

Farkelife profile image
7 Replies

My polymyalgia condition affects my shoulders, very stiff and achy, stopping sleep. Stiff arms and hands, pins and needles. I am going to move my Prednisolone dose back up to 10mg. Any thoughts?

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Farkelife profile image
Farkelife
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7 Replies
PMRpro profile image
PMRproAmbassador

More information would be helpful - like current dose and how you got to it, time scale and so on.

Basically though, you need enough pred to relieve the symptoms. If what you are currently taking isn't doing that you possibly do need more.

Knitwits profile image
Knitwits

What dose are you on at present ? I have found as soon as I go below 9mg the pain keeps creeping back.

Farkelife profile image
Farkelife in reply to Knitwits

Was on 12.5 but got down to 8 has been fine but last week murder,

johnybiker profile image
johnybiker

Same here went from 15 to 8 over 5 months OK then below that rough again.. Bumped back to ten for week then back to 9..seems OK.. Advised my doc who said OK to do and give it six weeks then try back to tapering... Why feel bad for the sake of 1mg.

Farkelife profile image
Farkelife in reply to johnybiker

My doc says to keep on normal dose, but I have read quite a few who say blitz on higher does for a week then recede. I think I’ll try that to alleviate pain!

HeronNS profile image
HeronNS in reply to Farkelife

It makes sense. Don't drop right back to where you flared, though. Are you able to go by 1 mg steps? After you're sure you'll be good at 9 if your 10 mg week does the trick, then you could consider slow taper in half mg steps from there. If you have uncoated pred you can cut tablets to achieve half mg.

PMRpro profile image
PMRproAmbassador in reply to Farkelife

He's happy for you to get into a proper flare and maybe need to go back to the start then?

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