Question for those in remission
For those who are lucky enough to be in remission... - PMRGCAuk
For those who are lucky enough to be in remission. Did your symptoms just disappear one day or was it gradual?
Written by
Dubuquer
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17 Replies
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GCA, PMR or both?
Nothing in your profile to help with an answer.
Can you say anyway I would like to know PMR
We need details to answer queries like this and remember every person will be different. Could you fill in your profile details please. YBB
I was diagnosed with PMR in 2018 and have been off prednisone since December. I have some aches and pains that I didn't have before PMR and am wondering if they will go away too. Thanks!
I could not answer your question................GCA only, however if you look at my profile, you will see why I asked.
What sort of aches and pains and what, if any, other medications are you taking?
Could you fill in your profile details please. This enables out members to help advise you better. Thanks. YBB
I think you need to reflect on whether these pains are similar or the same as PMR as you had it or in relation to known PMR symptoms.
Does the OTC painkiller help at all? I know where my different pain centres are in my body. Some overlap with pmr, others are based on old injuries (knee), some with OA getting worse, and nerve damage and old spinal injuries, together with fibro have impact too. If it feels like PMR pain then maybe it is?? Basically PMR very rarely goes into remission in 12mths and if you haven't been pain free since stopping pred then you need to consider PMR never went into remission and is still bubbling under and inflammation building up.
You don't explain what kinds of pain and when, or if painkillers work. I haven't gone into remission at all so can't help with that, but there are other kinds issues that may impact you. Most people who have gone into remission have left the forum. 🌻
Dubuquer in reply to
Thank you! I suspect I was never free from PMR symptoms but was hoping that Aleve would help me out until they magically go away.
in reply to Dubuquer
It's the possible outcomes if PMR goes untreated that always concern me....much more than pred....just don't leave it until PMR gets full blown. A few mg now might stop 15mg later. 🌻
I had been free of symptoms for some time, but continued to reduce pred gradually. Reduced to zero about a year ago and have had no problems since.
How long did you have PMR before you were free from pain?
I was fortunate in that I was diagnosed very quickly. I was seeing an osteopath because of my 'sore shoulders' and she told me to go to my GP because she thought it could be PMR. By that time, it had escalated and I could hardly get out of bed in the morning. I reckon I had 'sore shoulders' for about 3 weeks (although one shoulder had been niggling on and off for years), severe pain/stiffness for a week, then started 15mg pred and within a day the pain and a lot of the stiffness had gone.
I do realise how lucky I was - diagnosed quickly, the pred worked, and I got to 0 in 8 or 9 months.
Not sure that is the right question - I had had the symptoms of PMR for over 5 years before being offered pred for 6 weeks, a taper of 2 weeks each of 15, 10 and 5mg. In under 6 hours the pain was almost gone, it returned within 6 hours of missing the first 5mg dose. Well over 10 years later I am free of pain on the right dose of pred. Too low and the pain and stiffness returns. It hasn't gone - it doesn't for about 5% of patients and you don't know if you are one.
Thank you everyone for all the input!
