Improvement or...?

[maria40]

Thought I was doing really well today. I'd slept for 8 hrs without needing to get up in the night and felt better than I had for a long time. Had vacuumed the flat by 10 in order to avoid the heat and still felt good. Got ready to go out but when I sat down to put my sandals on a wave of tiredness enveloped me like a lacy grey curtain and trip out was postponed. Perhaps I'd just run out of spoons or am adjusting to first week on 7mg having come slowly down from 7.5. Hope the lively period will be extended tomorrow!

[HeronNS]

You ran out of spoons. Pity it was the trip out which got postponed and not the vacuuming. Still you may recover quite quickly if you are having a nice rest now. Cheers!

[Thelmarina in reply to HeronNS]

😂

[PMRpro Ambassador]

I keep the vacuuming for last! Do the fun stuff first

Though actually - the iRobot saves us being too dusty ...

[YuliK in reply to PMRpro]

My children presented me with an iRobot.

Best thing since sliced bread. 👍👍

[DorsetLady PMRGCAuk volunteer]

Hi,

Lesson 1... don’t do housework before an outing!

Better still, ditch the housework, and just go out! Especially on a nice day.... the housework will still be there come the rain!

[YuliK in reply to DorsetLady]

You DL and PMRPRO are women after my own heart.

[DorsetLady PMRGCAuk volunteer in reply to YuliK]

Life’s too short and precious for mundane things! Something you learn as you get “older and wiser”!,🤦🏻‍♀️😳

[PMRpro Ambassador in reply to DorsetLady]

Ditto - no-one ever said on their deathbed they wished they'd done more cleaning ...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Actually when we first moved to the Outer Hebrides in the 1980s one of the other wives who been there some time said to me - “whenever you get a nice day here forget the housework - get out and enjoy it - you don’t get many”. And she was right it was either blowing a hooley or persistently raining! 💨💦

As you can imagine I didn’t need telling twice.

[PMRpro Ambassador in reply to DorsetLady]

Not quite the Hebrides - but living on the northeastern coast of the UK is much the same. If it is a nice day - grab it!

[Oumaof2 in reply to PMRpro]

Ditto on Co. Antrim coast...

[patriciawhite in reply to DorsetLady]

Just got back from the Isle of Lewis .1st holiday on 20 years .Oh the journey home ,the trees ,the lochs Scotland will be seeing me again .Maybe not Lewis ,Harris ect it was too far form Cheshire .I know what you mean about the weather

[DorsetLady PMRGCAuk volunteer in reply to patriciawhite]

We lived on Benbecula for 2 years (hubby in Forces). Some days you couldn’t set foot outside door without being blown over- but remember walking home from a summer ball at 3am in the morning in the gloaming - so not all bad. The dog loved the beaches, although the sea was bl@@@y cold - no good for sunbathing! I think the cat hibernated the whole time!

[maria40 in reply to DorsetLady]

It had reached the point when I had ditched it so often I couldn't bear to see it in the bright sunlight. My daughter brings her moulting black labrador with her and traces of his presence linger on my beige carpets for days. Believe me, I'm no enthusiast for housework but this had to be done or I would have had to abandon the living room entirely.

[DorsetLady PMRGCAuk volunteer in reply to maria40]

Much as I love dogs, I think I would ban him/her from the beige carpet!

[PMRpro Ambassador in reply to maria40]

Hand her the vacuum before she leaves. Or ban him from the carpeted area.

[Baileyw06]

You ran out of spoons , I know the feeling!You did the right thing by listening to your body!

[SheffieldJane]

If only we could predict this. I recognise it so well. My guess is that it is our Adrenal function sparking and fading at this level of steroid treatment. When it’s good, it is very, very good.

[PMRpro Ambassador in reply to SheffieldJane]

You can't predict it. So when you feel good, sod the housework. It won't go away

Dust is very patient. It will always wait ...

[Yellowbluebell]

I dont believe in dusting until.people can write their name in it. If they avoid doing that it can mean I dont have to dust for ages!!

[PMRpro Ambassador in reply to Yellowbluebell]

Mine is sometimes so bad you can't write in it, it has consolidated too much

[Thelmarina in reply to Yellowbluebell]

This works especially when very small children are present 😀

[SnazzyD]

The 7mg area often halves the spoon count.

[PMRpro Ambassador in reply to SnazzyD]

As little as that?

[SnazzyD in reply to PMRpro]

Fair point

[Suffererc]

Have been there recently. Had two days where I thought I was better. Then it all started again, had to increase the pred by 1/2 mg then back to normal with minimal aches and dreadful tiredness. But am still tapering and am now taking 'nearly' 5 1/2 mg every few days. So here's hoping. I am never pain fre when tapering but feel good in the mornings. My body does not like to be in bed or sit down but other than that I feel quite good

[Marijo1951]

Thanks for posting this.

I've arranged to take a slow walk along the Regent Canal this afternoon with a friend to take advantage of our current lovely weather. I was just about to get the vacuum cleaner out thinking it would be nice to come back to a less dingy flat, when I read your post and thought 'Oh yes, I can relate to this ...' , so I decided to leave it in the cupboard. I'm struggling at 7 mg too. I thought when I was first ill that it wasn't possible to feel more tired than I did then, but I've learned different since.

Another Maria