Ronyzy Back. 🌹🌹

[Rocketronzy]

Hi gang. Haven’t been on here for a while.

No haven’t been in the land of ‘ well’

But I’m not doing to bad. Thanks to all.

Got a Rummi now. 😳 down to 1, 1, then nowt. 😳.

The morning after non is telling. 😬

But it looks like I’ll have to put up with it

Now also got Osteoarthritis. But I don’t

Blame that the terrible mornings stiffness

On that as they do. 🧐

Got a letter from Rummi saying there is

Now markers of PMR in blood. So may review

Prednisone. So I’ll see you in a few months. 😱

So in a way I’m worse off with a flaming Rummi. 🤔

Not really complaining. 🤔 just telling how it is.

Now got another complaint to my list.

( Gilbert Sindrum ) who’s herd of that 😳

It isn’t too much to worry about. 🤔

Wishing you all the Very Best. Xxx

Ronyzy.

[PMRpro Ambassador]

Never mind "may review pred" - you need to go back a step or so NOW!

You've done brilliantly and it would be a shame to spoil the ship for a h'p'th of tar. You are obviously fine on a very low dose of pred - if 1mg per day does the job I'd be on it for life!

[Rocketronzy in reply to PMRpro]

That’s what I thought. But doctors say firmly must stick to what Rummi says. They monitor my pred monthly.

All they thinking of getting me off pred. 😳 as I have said never ever bad side effects. 😳.

I feel some how must contact Rummi. 😊

Thank for your support

Ronzy. 🌹🌹🌹

[PMRpro Ambassador in reply to Rocketronzy]

Definitely speak to the rheumy. It would be such a shame to go backwards now. And if the markers are going up - the pred isn't enough.

Keep in touch.

[Maisie1958]

Great to hear from you Rocketronzy though I’m sorry about the Rheumi problems. PS I have heard of Gilbert Syndrome -I’m watching GPs Behind Closed Doors now ! All the best to you.

[Rocketronzy in reply to Maisie1958]

Thanks Maisie. Thank for your response.

Not sure what you mean watching behind closed doors.

🌹🌹

[Maisie1958 in reply to Rocketronzy]

😂 Good to have you back! I’m still watching telly-Sky 159! I’ve been doing ok on 1-2mg Pred -one GP happy with that-another wanted me off prednisolone in a year! Have a great weekend.

[karools16 in reply to Rocketronzy]

Name of tv programme

[SheffieldJane]

Take care Ronzy! You seem to be doing fine.

[Valnvaughan]

I was diagnosed with Gilbert’s Syndrone during various PMR blood tests. Apparently a non threatening lifelong condition affecting the liver, but can give “out of range “ blood test results. Just one more to add to list. I also have raised BP 40 years, Hypothyroidism 30 years, urinary problems for 20 years ( with a co-pol suspension, for those who understand medical) , then PMR 4 years, and osteoarthritis for 2 years- cured by 2 hip replacements.

I have only seen my GP for PMR, started on 15mg Pred reduced down with a few flares and now on 3mg per day.

All the best, Valerie

[Rocketronzy in reply to Valnvaughan]

Thanks for that Valnv.