? Link with A Fib: Hi, just being diagnosed mid... - PMRGCAuk


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? Link with A Fib

Joanmc profile image

Hi, just being diagnosed mid Dec with PMR. Waiting to see Rheumatalogist. I was commenced on Prednisolone 15 mg with great results immediately. I have started tapering 48 hrs ago. Fell ok but in low mood. My teeth seem very sensitive. I am wondering if there if any link with A Fib which I have . I have had 2 Abalations. Only discontinued my Beta blocker in Nov under Carciologists supervision and the bang PMR. A Fib is now under control.Thanks Joanmc

4 Replies

Hi Joan and welcome if we haven’t spoken before. What do they give you that controls your Arterial Fibrilation? I take Atenolol for raised blood pressure which I believe is of the beta blocka family.

Sorry that you are in a low mood and have sensitive teeth. I have experienced both in my years with PMR. I have only made the link with the teeth recently. I find sensodene toothpaste or similar works. You can rub it on the actual spot. If Pred goes for our bone density it probably impacts on teeth and nails. I hope you are at least on vit D supplements plus dairy. Which taper are you using? You probably know that most of us use slow methods such as DorsetLady’s or dead slow nearly stop described on posts here. As for the low mood, I find that I am at my worst when tired and a nap really helps. Be on guard for it becoming full blown depression though. There is an awful sense of loss with chronic diseases and plenty to brood about. Seek treatment sooner rather than later. All the very best Jane. X

Joanmc profile image
Joanmc in reply to SheffieldJane

Thanks for your reply. I was on Solatol for18 months. Abalation appears to have sorted it, I couldn’t wait to get off it as Ihad very little drama is on it . Just finished in Nov and the bang PMR.. I decreased by 2.5 as discussed with GP for 2 weeks. Regards Joan

SheffieldJane profile image
SheffieldJane in reply to Joanmc

2.5 is a steep drop. I did 1mg once a week, then 1 mg twice a week and so on until I was on the lower dose every day. If all was well, I would repeat the process. Slow but sure and no flares until trying for 6 mgs and getting a bad chest infection. I then flared and took an extra 5 mgs for a couple of days and managed to go straight back down to 7 mgs. I am just beginning the journey down to 6 mgs. Do stop if you hit stress, illness or accident. Good luck!

PMRpro profile image

Not sure what you mean - a/f doesn't cause PMR but the autoimmune part of PMR can damage the elctrical cells in the heart and lead to arrythmia - the case for me. My a/f is definitely linked to the vasculitis part of PMR and if the inflamamtion increases in a flare of the PMR - so does the a/f. The cardiologist says she can't offer any more so I should make sure the inflammation is well managed with the pred - they keep ablation as very much a last resort here as it is rarely a permanent result.

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