Temporal Artritis

[Berylholley]

Should I still get symptoms when reducing. Nothing painful just bruits inside upper arm muscles and temples. I am currently at 7.5mg.

[DorsetLady PMRGCAuk volunteer]

The aim is not to, but doesn’t always happen.

Do they come on virtually immediately and go after a few days (likely to be steroid withdrawal) or after a week or so after dropping to new dose - and remain?

If former might be worth trying a staggered taper like this -

healthunlocked.com/pmrgcauk....

If they are more like second scenario then you’ve probably dropped below the level you actually need.

Plus of course around this level your adrenals need to think about waking up, so it could be that as well!

[Berylholley in reply to DorsetLady]

Thanks for reply, I have had them all along and am thinking it may be normal as my arteries are deformed. I have written a letter to my Rhumy as he hasn't sent for me yet. Told him I can feel the arteries in my scalp. I hope my adrenals are kicking in.

[DorsetLady PMRGCAuk volunteer in reply to Berylholley]

Ok. Please keep us informed of how you go on.

[PMRpro Ambassador in reply to Berylholley]

If they have been there all along I doubt it is a problem. Bruits are due to disturbed blood flow, like in a river when there is a bend or something sticking out into the flow. If you have deformed blood vessels that isn't likely to change.

[Berylholley in reply to PMRpro]

That was what I thought it might be but you have explained it beautifully. I couldn't see how they could recover. Fortunately it is only now and again but it is a bit worrying.