So I’m reducing this week from 4.5 down to 4, on the DSNS , and I end up taking 2 mg instead of 4 cos me maths are gone out the window with everything else. If fact I nearly forgot the pills as my plate has white spots on it and I didn’t see the pills!
Honestly I think I’m getting worse.
But good news is I didn’t have any side effects or withdrawals x so a silver lining to the cloud .
Quick up date on painful toe/ foot. All is well again. Swelling went down and blood results were normal, unlike my brain x
Carole
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9lives
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Wow! Maybe it's what they call the "new" math! I'd do the same for sure... I never had a head for math; and these days 1+ 1 boggles my mind. I end up philosophising about meaning of of the number 1. Good luck tomorrow!
I note your progress with real interest Carole because we were diagnosed at around the same time. I am tentatively embarking on PMRPro’s dead slow nearly stop to get from 7 mgs to 6.5. One sparkling day of no symptoms and I reward my body by taking its sweeties away!
Aww good luck, it’s such a slow process but better safe than sorry 🙁x
Keep those sweeties at bay..
I wonder if we get will get to the club zero together??🙀🙀
I think we know our bodies a lot better now and can judge things for ourselves, which at the beginning is difficult.
I feel for the new people diagnosed with GCA/PMR cos we know it’s a long journey for them.
My GP wanted me to reduce by 1mg. Each month on my last visit , as I’m down to 4.5 , but I explained about the DSNS and the 10% , so she lets me do what I’m happy with now. But if it wasn’t for this amazing site I would of just gone along with what she said.
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