I am pleased to report that changing the doctor that I have been seeing in a group practice has been worthwhile, although the referral process will probabaly mean months of waiting.
After a year of appointments with the doctor who first confirmed my PMR (and started me on 50mg of prednisolone!! ) and who then proceeded to put me under constant pressure to taper until I had an almost inevitable flare in January, I decided to see one of the other doctors in the group.
Not only has he referred me to a Rheumatologist but today he has referred me for an MRI to see if my face and jaw pain are caused by GCA or LVV or result from TMJ (temperomandibular joint) problems. He also agreed that I should manage my PMR pains with the amount of pred that I felt worked!!
OH THE JOY OF BEING LISTENED TO!
Has anyone else had an MRI of the head and neck to look for the cause of facial pain? I already know that I have damage to my neck at C5/C6 from a whiplash injury but the pred (and fentanyl) have pretty much reduced all the other body pains over the past fourteen months. I notice pain is creeping back in my thumbs and hands as I reduce the dose and I am also noticing tingling in my finger tips, all of which was investigated five years ago by Spinal consultants and found to be of no significance. Now I wonder if they were early signs of PMR which was aggravated by the STRESS of being ignored!
Grateful for any input on this, Chrissie