Hi, I'm new to writing in forums and somewhat new to the wonderful world of PMR. I was diagnosed last July at age 51 after developing the classic symptoms of bilateral pain in the legs, groin, arms and shoulders. Extreme fatigue also accompanied the pain and after an initial dose of 20MG of pred (SED rate was 66) the symptoms improved dramatically. Since then I have been gradually reducing the pred at 1mg every two weeks to 12 mg when I experienced my first set back. A bout with a head cold and fever caused the SED rate to shoot back to 49. During this set back the soreness and fatigue have significantly increased and are prevalent throughout most of the day. My GP put me back up to 13MG but I am doubting its effectiveness this weekend. As those that have written on these posts know, this is a real bummer. Until PMR I was extremely healthy, active, positive, and loved to go full speed at work or while hiking, skiing, etc. The realization of the limits that PMR is either setting or I am setting because of PMR is the hardest thing to get used to. The fatigue is the one symptom I could do without. From what I gather through these posts I need to reset my expectations and find things to do to replace so of my activities with others that I find satisfying. Maybe writing in forums will do just that!
Thank you for reading and most importantly, thank you for sharing your PMR journeys as they are as helpful as that initial jolt of Pred that we all experienced.