Wake up extremely stiff in lots of pains not the joints the muscles ease off after about
30 mins but not completely. Seams to be getting worse and lasting longer.
No swelling or deformed joints. Got ideas what I think it could be but not saying as don’t won’t to put ideas into your hardships. I do lots of exercise coming down off pred as most of you know. Now down to 5 mg.
I could be cynical and say "PMR returning as you get to too low a dose...
Not too sure anymore since visiting rumi and talking to people people that as or had pmr it never lasted for me only very stiff in lots of muscles until walking and working off for half an our. Unless it was cought in early stages. Avery one I speak to say they could not lift there arms etc.
All I am sure of is been on pred for nearly 6 yrs.
And now seam to be getting worse as coming down. 🙄
I agree with PMRpro and Dorset Lady. I also am on 5mg and just like you wake up with various body pains, even stiff hands which I didn't have when it all kicked off.
So it sounds like PMR to me. 😕
Oh forgot, gets better when I become more mobile very quickly. So 5mgs is keeping it at bay.
You’re probably right girls. I slither out of bed.
This pred joby Is a booger can’t emaging 3&2 😬😲
Ha ronzy, just to put the record straight, I might be Pastit, but I'm a Male of the species 
Pete
Going to see doc on 4th. Paraps May mention that test to see if adrenaline
Gland is working ok that’s if he does Not. Going to see a man this time things the lady doc on holiday.
Another new doc. 🙄
I wonder if you could head this stiffness off at the pass by taking your precious 5 mgs at 3-4 am then going back to sleep? Might be worth a try.
I do that Jane sometimes helps ,well mostly.
Sorry pastit .🤭There are a few on of us is males 😂😂
Today much better on 6 today
Now fo I go back onto 5 tomorrow or
Stay on 6 till I see doc on 4th.
Benn on 5 nearly a month now with a few lapses back to 6.
It’s a booger this pred. And the dredging 5. 😱😬
Good plan and you are getting there Ronzy. Let’s hope 2018 is the year you go free.
I’m fine now back to 5.
I have just remembered what that awful pmr Rumi said.
My morning stiffness was nowt to do with pmr and when I and when I asked him what it could be he said he did not know. 😱. Useless.
I rais my glass to pmr pro. 🥂🥂🥂🌹🌹
Strange - morning stiffness is listed as a criterion for diagnosis of PMR. Though we do keep trying to explain it isn't JUST morning stiffness - it can last all day and for some people isn't morning at all.
But - thickness personified if you ask me!!!!
It’s dornting to think Evan some so called rumitollogist are a bit clueless when it comes to pmr I suppose Rumi is a massive field.
And if you haven’t got the simtums at that time 😲🤔😬
What? Sigh - PMRPro is your real Rheumie and no wonder with comments like that.
PMR What The Heck
Not sure what to do now 
Update “not sure if it is PMR“
Not sure what to do!
not sure what’s happening?
