Not sure what the heck is rong with me. - PMRGCAuk

PMRGCAuk

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Not sure what the heck is rong with me.

Rocketronzy profile image
15 Replies

Wake up extremely stiff in lots of pains not the joints the muscles ease off after about

30 mins but not completely. Seams to be getting worse and lasting longer.

No swelling or deformed joints. Got ideas what I think it could be but not saying as don’t won’t to put ideas into your hardships. I do lots of exercise coming down off pred as most of you know. Now down to 5 mg.

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Rocketronzy profile image
Rocketronzy
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15 Replies
PMRpro profile image
PMRproAmbassador

I could be cynical and say "PMR returning as you get to too low a dose...

Rocketronzy profile image
Rocketronzy in reply to PMRpro

Not too sure anymore since visiting rumi and talking to people people that as or had pmr it never lasted for me only very stiff in lots of muscles until walking and working off for half an our. Unless it was cought in early stages. Avery one I speak to say they could not lift there arms etc.

All I am sure of is been on pred for nearly 6 yrs.

And now seam to be getting worse as coming down. 🙄

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

Agree with PMRpro!

I agree with PMRpro and Dorset Lady. I also am on 5mg and just like you wake up with various body pains, even stiff hands which I didn't have when it all kicked off.

So it sounds like PMR to me. 😕

in reply to

Oh forgot, gets better when I become more mobile very quickly. So 5mgs is keeping it at bay.

Rocketronzy profile image
Rocketronzy in reply to

You’re probably right girls. I slither out of bed.

This pred joby Is a booger can’t emaging 3&2 😬😲

in reply to Rocketronzy

Ha ronzy, just to put the record straight, I might be Pastit, but I'm a Male of the species :-)

Pete

Rocketronzy profile image
Rocketronzy

Going to see doc on 4th. Paraps May mention that test to see if adrenaline

Gland is working ok that’s if he does Not. Going to see a man this time things the lady doc on holiday.

Another new doc. 🙄

SheffieldJane profile image
SheffieldJane

I wonder if you could head this stiffness off at the pass by taking your precious 5 mgs at 3-4 am then going back to sleep? Might be worth a try.

Rocketronzy profile image
Rocketronzy in reply to SheffieldJane

I do that Jane sometimes helps ,well mostly.

Sorry pastit .🤭There are a few on of us is males 😂😂

Today much better on 6 today

Now fo I go back onto 5 tomorrow or

Stay on 6 till I see doc on 4th.

Benn on 5 nearly a month now with a few lapses back to 6.

It’s a booger this pred. And the dredging 5. 😱😬

SheffieldJane profile image
SheffieldJane

Good plan and you are getting there Ronzy. Let’s hope 2018 is the year you go free.

Rocketronzy profile image
Rocketronzy in reply to SheffieldJane

I’m fine now back to 5.

I have just remembered what that awful pmr Rumi said.

My morning stiffness was nowt to do with pmr and when I and when I asked him what it could be he said he did not know. 😱. Useless.

I rais my glass to pmr pro. 🥂🥂🥂🌹🌹

PMRpro profile image
PMRproAmbassador in reply to Rocketronzy

Strange - morning stiffness is listed as a criterion for diagnosis of PMR. Though we do keep trying to explain it isn't JUST morning stiffness - it can last all day and for some people isn't morning at all.

But - thickness personified if you ask me!!!!

Rocketronzy profile image
Rocketronzy in reply to PMRpro

It’s dornting to think Evan some so called rumitollogist are a bit clueless when it comes to pmr I suppose Rumi is a massive field.

And if you haven’t got the simtums at that time 😲🤔😬

SheffieldJane profile image
SheffieldJane

What? Sigh - PMRPro is your real Rheumie and no wonder with comments like that.

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