I did not respond well on trial of steroids and have been trying to keep a diary of symptoms, how i feel when they happen and if anything helps them.
I presented with classic PMR symtoms, shoulder, pelvic pain and stiffness, sweating and feeling pretty awful.
While the above is ongoing i aslo expereince some type of flare every so often which is very different from the above. During this time i feel like posion is running through my veins, i am dehydrated, nauseous,restless, burning hot and sweating, joints more painful also low key pain running through my trunk. The worst symptom is the feeling of being very unwell. The episodes can last for several hours or days and no ammount of pain relief or rest eases them. The minute the episodes end i can feel it has gone from my body.
If anyone can identify with this i would appreciate your thoughts as i am finding it so difficult to convey how these episodes make me feel.