Hi, just thought I would let everyone know the PKD charity held an information day yesterday in Birmingham and it was great. The charity tries to organize these days a couple of times a year in different locations so if you would like to come along head to the PKD Charity website or our Facebook page to find out when the next one is.
They really are worth a trip, very informative and you get to meet lots of people.
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eddyg
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The one we attended at Southmead, Bristol some years ago concentrated on the genetics of PKD which is well known about and easily found on the internet and brain aneurysms in gory detail. Too much time was spent explaining surgery which in my mother's experience didnt even get mentioned when they discovered hers. It was a bit of a waste of time.
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