The study is called 'A Multi-centre, Longitudinal Observation Study of Patients with ADKPD to Establish the Rate, Characteristics, and Determination of Disease Progression'. It's sponsored by Otsuka and a number of renal units around the UK are recruiting patients.
Has anyone here been enrolled onto a ... - PKD Charity for A...
Has anyone here been enrolled onto a new 'Observation' research study into ADPKD?
PKDC-AdminPartner
Written by
PKDC-Admin
Partner
To view profiles and participate in discussions please or .
3 Replies
•
No. Im a Southmead patient.
No, I'm a Dorchester patient
Its probably too late now, but if this trial is still ongoing could you advise who to contact please?
Not what you're looking for?
You may also like...
I have ADPKD and have been on the TEMPO study since 2007 - anyone out there like me?
I don't know how much impact Tolvaptan has made on the size of my kidneys and cysts because I...
Tolvaptan and PLD
Hi
My nephrologist is consider starting me on Tolvaptan.
Has anyone heard of the the medication...
Does ADPKD always lead to ESRD (Kidney failure)?
I was told that half of all PKD patients will have kidney failure by 50 years of age with few...
Clinical Trial
My daughter has been offered to participate in clinical study for pkd. Looking for any thought or...
I have huge polycystic kidneys and liver. I am having one of my kidneys removed to make room for a donor kidney. Has anyone else had
removal of polycystic kidney/s followed by transplant and then their other kidney and liver dealt...