I know PBC effects males but am I the only one on here...?

[enalynot]

[Cristina_Romania]

There were previously (months ago) posts by another gentleman,you could maybe find him. Also, the PBC Foundation can surely direct you to other male patients. All the best !

[SlartyBartfast]

Oddly enough I was just wondering the same thing when I came across your post! So the answer is no you are not. Though for sure we are in the minority. I have only recently been diagnosed (at the grand age of 56) and still trying tom get my head around it, though on the whole I am OK. How are you doing?

[enalynot in reply to SlartyBartfast]

Diagnosed last week grander age of 64 started tablets today no symptoms to talk about but told I'm stage 4

[littlemo in reply to enalynot]

Hi there welcome to the site I would advise you to contact the PBC foundation they have a wealth of info and support available. And you also have us all on here mostly women but hey u no how women like to talk so you are not alone. The symptoms of PBC are the same more or less whether you are male or female. Only big difference is our darned hormones can sometimes make some of the symptoms worse at times so count yourself lucky on that front. Ha ha! Take care try not to worry read the blogs of others like myself by clicking on our icons might give you some reassurance that having PBC is not the end of the world. Bfn.

[SlartyBartfast]

I have no idea what stage I am at! Likewise re symptoms, apart from getting a bit tired I am fine. Lets hope it stays that way for both of us!

[Hidden in reply to SlartyBartfast]

Hello, good to read from men using this site (tho' in the ideal world none of us wouldn't have PBC and wouldn't be on here, but you know what I mean).

I'd not even want to go down the route of being informed what 'stage' I have with PBC as I'm not actually interested.

All I am interested in since diagnose (Dec 2010, I am 48 and female) is trying to keep fit and healthy and keep this PBC at some favourable semblance. My big gripe with it is itching which I do suffer at night-time but I'm fortunate these days I don't actually suffer from fatigue or feeling very tired.

[gbell]

HI guys,was dxd 6 years ago,take 3 urso a day suffer from itching & tiredness but not to bad i am now 64 hope you all feel well.......

[MrLiverLiver]

Male here, diagnosed 2010 at 47 yoa. As far as symptoms go, don't have itching but I have some of the other symptoms associated with this condition. I also have no idea what stage I'm at and take 5 Urso a day.

[berg944]

I am a man..............this post is turning into a scene from 'The life of Brian'

[allotment]

I am male and was diagnosed with PBC 12 yeasrs ago. I am 67yrs old. Biggest problem I have is the tiredness. Fed up with it!

[SlartyBartfast]

Tiredness is about the only symptom I have. I have suggested a day bed in the office but I don't think the staff would approve!

[Hidden]

Interestingly, I seem to have noticed that the majority of males contributing don't seem to develop the itch.

Seems to more prevalent with the females like myself who gets night-time itching.

[CBCB]

One more.. I live in Maryland USA. We are no doubt in the minority but do experience many of the same symptoms. I was diagnosed 5 years ago. 60 now. Stage 2 by last liver biop. Do get some minor itching. Do seem to have other autoimmune issues as well. I take 1250 mg URSO a day. Best to all!

[2001miata]

Male, diagnosed 3 years ago. You are not alone although in my part of Canada I feel that I am all alone

[Philippastcarin]

I'm Philip.

diagnosed 4 years ago.I take a lots of stuff one being 600mg urso a day I'm at stage 3 I'm told with cirrhosis, it also brought with it, osteoporosis, lethargy, poor memory, itching etc. I've been at this stage from diagnosis but for the addition of osteoporosis its working well , believe me for the most part I feel great because I have got use to the change in life style, i'm very active, I have a very defiant and positive attitude. Just miss rugby but as I'm 52 maybe I should listen to the experts.

[PCBnPBC]

Hi,

I think my diagnosis was on the same day you made this post (or very close).

I went for a "well mans check up" <big mistake that was!!> turns out that my last visit to the Dr (3 yrs ago for same well man tests) failed to pick up my bloods whose readings were as crazy as the readings in Dec12 (Jan 13 actually as they lost Dec12 bloods) and my GP (works as Hematologist one day per week) diagnosed it, local consultant offered me appointment after 7 months, I went for a private consultation and PBC was confirmed,

No idea (or care much) as to what number or stage I have. I gather my liver is extremely swollen, and with much cirrhosis, and bands or ridges.

Note I went for a well man clinic - aged 59, Male ... I never went to Dr. at all........ now have fatigue, inability to sleep, strange bowels (need to poo after every meal) i'm on 375 Mg x 3 UDCA and beta blockers for varicees in my stomach, had a nose bleed last night (first in 40 years, relavant?) get cramps in legs and last week in my little finger! tired, brain fog, very shortened temper fuse (and going "off on one" for no real good reasons) are my main issues.

PROBLEM: If my bloods were same 3 years ago, and PBC diagnosed this year from bloods alone, PBC is not new to me, why are the severe symptoms now present? I do not believe I could fall into kidding myself (strong emotionally compartmentalised MALE that I am) , so is it the medicines? progression of PBC? me being aware (rather than ignoring) symptoms? (some are so strong I simply could not have ignored them in the past)

Slowly coming to terms with it all, s l o w l y I am simply not used to dealing with unwellness...glass being half full, here is a chance to learn additional skills.... (glass referred to was fruit juice not Lager or Cider as it used to be!!

Must get an ICON for my posts,