i scored 0 points as they lied despite havi... - PBC Foundation
i scored 0 points as they lied despite having my claim recorded, waiting for my hearing, but my illness is worse, what can i do.
I can understand your frustrations.
Perhaps give us a call in the office and we can talk this through with you?
Yours,
Robert.
Hi yer not well. Sorry to hear about your trouble with the ESA. We both know that the Atos personal are fully qualified medical people who for some bizarre reason have forgotten why they got involved with the medical profession in the first place. Anyway I can't say to much at this point because I don't know the circumstances that related to your assessment. that does not mean im prying into your medical history. Im not. The details I may be able to help with are things such as did you go alone ? what did you notice during the assessment that might have seemed a little odd. With this I mean the questions they asked you, did they actually relate to the main problems that you had at that time. did they listen to any additional material you tried to add in your favour either verbally or written medical evidence Did they show any interest in your condition and did they suggest anything that may help you. you have to understand that this a medical assessment and every detail has to heard and recorded no matter how trivial, not just what they want to listen too. I hope you appealed against the decision because I did. I appealed, and I won by turning their own twisting written material back into the truth with medical evidence to back it up. Remember their is always hope so get in there and fight it.
Hi DTEES, i took my partener with me and also had the interview recorded and have a copy, they fired a lot of questions at me but twisted what i said , for instance i was asked about my social life,i said that i could never make any plans as often i felt too ill to go out, i actually have not been out on my own for years as i feel frightened, i get panic attacks, i told them this but when the forms came back to me with 0 points they had written that my typical day consisted of going to the pub and shopping and that i had no problem going out on my own, i asked what might help me but was told that they were not allowed to comment, strangely i was asked to bring my thumb and first finger together in a circle,what has that got to do with fibromyalgia, although the questions were not odd what i said was twisted into something completely different, i am appealing but have not got a date yet, and i went for my assessment last november.
Sorry to read your comment notwell.
I've not got any experience of ESA or DLA (apparently now the new PIP) but from what I keep on hearing/reading it can be a rather fraught process to go through.
Definitely do not throw the towel in and make it your hobby (probably not the right word there, don't mean to offend) to press on, you could have more lost in not doing so if you feel that you do need that support.
Saying it all this it doesn't actually surprise me as at present even if I'm feeling pretty great, I don't think the majority of GPs take it seriously.
Don't know if you have read but PBC is on the DWP site and here's the link if you want to read. It might throw some other pointers up for you as well. Good Luck.
dwp.gov.uk/publications/spe...
What a good link peridot. My assessment is in two years time and I found this link extremely useful . I hope not well did too. Thanks so much.
Good to read that you looked at the link romulus.
Altho' as I have stated I have no experience of DLA, ESA and the new PIP except for what I have read about these.
But with this PBC one never knows what the future brings and I might need others to offer their input at some time with regards to feeling so bad I can't work.
These assessments are turning into nightmare for so many people - the sooner they are gone the better!
it is always worthwhile trying to keep a record of how your illness affects you so that you can have something to refer to when you are answering questions either on forms or at interviews. Sometimes, because we suffer the symptoms so often or continuously, you find ways of adapting to them. Then if someone asks you how the illness affects your life, you forget to mention it because you've found away of 'managing'. An example of my 'adapting' is that I no longer cook anything when i am in the house on my own because I've had so many near misses (burning things. forgetting to turn rings off, burning myself). Because I now have a 'routine', if anyone asks me, I forget to mention it.
