Any advice or suggestions on managing pain ... - PBC Foundation
Any advice or suggestions on managing pain that seems to be of 3 types: joint (wanders around) muscle and "bone" lower legs
I have similar and have been on co proxamol for years. Problem is I dont think it is enough because my body has probably got used to the co proxamol. I have tried swimming and some other exercises but they make the pains worse and it exacerbates the fatigue. Short answer I have just learned to listen to my body. When it feels better I take more exercise, when it feels bad I rest. Sorry if this is not much help. X
I too wish I knew the answer! I have days I can hardly move due to pain levels in my legs and wrists but other than Tramadol nothing works. I have been using Tramadol a long time now and its not doing what it used to do. I agree with others....its about listening to your body and doing things at the right times.
Same for me, I've used tramadol for 14 yrs, and it helps, but lately it seems it's not enough for the pain in my legs.
My Dr. has given me a time released tramadol to go a long with the regular pill, but I've quit taking it for awhile because more than one will cause dizziness for me. I have another problem adding to the dizziness, so can't complicate it more.
Magnolia
I keep reading about how certain foods we eat will promote inflammation thus pain in our bodies. So I am seeing a clinical nutritionist to help me get on an anti-inflammatory diet. Don't know from your post if you have looked into this yet. Maybe doing this, combined with prescription pain meds would be helpful for you?
hi yer everyone. Im sorry to hear about your current painful problems and what I have heard up to press does not seem to be enough. For example, age, bodyweight.a well thought out exercise routine that allows for muscle recovery which is essential for future muscular endurance. There is also certain types of foods you could add to your diet such as carbohydrates and potassium. Most of you have mentioned about listening to your body which is good but our bodies can and do become dependent on all medications but learns to tolerate whatever you feed it over a period of time which eventually renders the substance pretty useless. Im sure you know all of this already but I am just going to suggest just a few more things. 1. Hydrotherapy. This is where a qualified therapist works with the patient in a pool that contains warm water. Depending on the severity of your medical condition. the therapist will provide you with exercises in the warm pool with aids such as floats and other things. you may find this a little uncomfortable at first but in time your condition will improve because the warm water will aid your circulation which should help drain away the Latic acid that usually contributes to muscular fatigue. 2. Try to focus on the foods you eat and if necessary do some research on the net to establish the good points as well as the bad points with the food you currently consume. 3.Aromatherapy is brilliant ( providing you not have a history of thrombosis because the massage will encourage your blood circulation which in turn provide new and fresh blood cells to the affected areas this will enable these areas to receive fresh proteins, enzymes and oxygen whilst clearing out latic acid which gels the muscle fibres together.4 Tai chi. this is brilliant for most physical and mental disorders for it uses breath control and very light exercises to gain maximum strength, greater flexibility with endurance and a sense of calm and inner peace. and finally if any of this is of use to any of you please try and find some group therapy which will aim to help you reduce your medication while trying any of the above. and whatever you decide try to discuss the whole thing with your DR. Hope this is of some use to you all. but at least I have tried. Good luck to you all from DTees
Joint, muscle and bone pain can all be associated with arthritis. After 5 years of seeing a rheumatologist I have finally be diagnosed with Inflammatory Arthritis secondary to PBC. I now take Hydroxychloroquine which has taken away 95% of the joint pain, 95% of the bone pain, and about 60% of the muscle pain - all of which I can now cope with without painkillers! I do still have tendon problems and Ive been having ultrasound treatment to try and get them to heal...early days to verdict is still out on that one.
Gosh I'm hearing what you are all saying and though I am supposedly only in the early stages of PBC (approx. 1 year) I am struggling with all this pain I won't call it agony but it's persistant and I find that on some days I can hardly walk and even on a good day I walk very slowly, I look like an old lady hobbling around (55) and of course the fatigue makes it worse - sorry I sound like a real moaner which normally I'm not, I intended to visit my Dr regarding this but after reading these comments I don't think there's any point it seems like it's a "grin and bear it" situation.
