Hi, I was diagnosed with PA about 6 years ago. For the first 3 years the monthly injections worked fine. A few years ago my health deteriorated, making it hard for me to walk without a walking stick.
About 18 months ago I started having weekly injections which helped a little, then in August I became even worse and now can only walk with a walking frame and only very short distances as my strength and muscle tone is nearly non existent. The eye sight in my right eye has also been affected.
About a month ago the doctor started me on injections every other day. I was wondering has anyone else been affected this way?
I'm starting to have some energy again, my strength has improved all be it slightly, but am worried that the damage has already been done and I may not be able to walk independently again. I live in Tasmania, Australia. Any feedback would be greatly appreciated.