im absolutely panicking

[ozwald28]

Hey guys

so sorry i know i posted recently. im absolutely going out of my mind i feel dreadful, like im going to die. anxious.

I gave myself another injection today, i feel absolutely dreadful. It feels like too soon since my last on friday last week. I am aiming for 2 a week but i am just not OK.

I also have a cold so thats not helping matters.

I feel spaced out. I have a twitch in my arm, feel weak. I am so worried im going to die.

I have been trying to recover from this since august, but deficient for long before that.

This has been my treatment and im just concerned im not where i should be. GP absolutely useless at this point.

Mid august, loading dose 1 every other day = 6 (meant to be the end for 3 months)

campaigned to move from 12 weekly to 8 weekly.

Taking me up until October, where i campaigned more for 4 weekly. Got a trial of 1 every 4 weeks for 12 weeks. That takes me until december where that trial ran out.

From oct-nov early dec my symptoms subsided i thought i was fixed.

Pins and needles began to return in december, realised i still need to fix this.

Got materials to S/I kind of really anxious and feel weird about it, S/I once a week since early jan

Since last week realised i may need to do 2 weekly but still feel like this is a mistake.

I am going to ring the PA society tomorrow. Having to take the day off work i think.

I hope this twitch stops and strength returns in my arms. b12 deficiency is so under-rated.

[Nackapan]

Everyone gets a flare up of b12 deficiency symptoms with a cold or any 'extras'.

Good you got some respite so soon and able to work.

Hopefully a blip as you dealing with x cold virus.

[wedgewood in reply to Nackapan]

“I need to inject twice a week but feel this i a mistake” —- no it can’t be a mistake . You cannot overdose on B12 . Do try returning to EOD . for the time being . Yes B12 deficiency can make you terribly anxious , and you are suffering with that now. It prevents one from thinking rationally. . Good idea to get in touch with PAS . Having been B12 deficient for a long time , recovery will not be rapid . Hang in there . We do hear that patients often get worse before they get better . It’s not uncommon .

Sending you best wishes .

[ozwald28 in reply to wedgewood]

Thanks sooo much i am so grateful for your reassurances. In those moments i was basically having a panic attack last night and just felt this shooting electric shock down my arm and so spaced out. What a nightmare. Am ringing PA society today.

[Mixteca in reply to ozwald28]

It's a tough call isn't it? I also have moments when I'm feeling very poorly and it scares me like hell. I've got a very busy brain and can get panicky and overwhelmed by it all. Sending you hope and better days ahead.

[ozwald28 in reply to Nackapan]

Thank you its so true, being ill on top is just the worst. Im so run down really really need to put my all into recovering.

[Parlay]

that feeling of dread is frightening and then the anxiety brings on a whole host of real physical symptoms. So beside the b12 are you supporting your body in every way it needs. Yes b12 is vital but so is a very clean diet maybe even writing a food diary (msg can promote anxiety in some people) plus other foods. Do you do magnesium l threonate or glycinate which helps with anxiety. Do you do probiotics. Vitamin D is essential for depression and anxiety. Unfortunately we now have to be our own help so try everything. Also mindfullness, tai chi, yoga. Taking charge is difficult when you feel like that but force yourself. I used to set up my I pad and do tai chi in my front room. I ended up laughing as my legs as arms did not coordinate and I looked like Kung fu panda. Good luck.

[ozwald28 in reply to Parlay]

thats amazing haha i feel a lot better today, i did some EFT tapping and slept a lot. We shall see how i go. God its awful isnt it

[GalDriver]

Sadly, there is no quick fix and B12's not a cure all but it can, certainly, improve so many things. I loaded with daily injections to start with and now, mostly, do alternate days. If I go longer than 3 days between I really feel it and decline quite rapidly. Having a cold makes everything worse. Your body is already dealing with lots. Good luck.

[SigNi]

Hi - intense anxiety - panic attacks - were my norm before we figured out the B12 issue. It is awful - but you are not alone, if that helps. And if it is B12 related it does get better. But it can take time and actually can get worse once you start injections - sort of a reversing out process. Everything can get worse before it gets better. And by the way, twice a week is not too much. B12 is water soluable - if you don't need it you will just pee it out. Also make sure you are getting enough B9 (once your B12 levels are improving - your body uses it up as part of the process of increasing your B12 levels. But it's a bit tricky as high B9 (folate) levels can mask a B12 deficiency. You'll have to decide when it's right to supplement. But a folate deficiency can cause some of the same symptoms and B12 deficiency. Please note - I'm not a medical professional. This is just my personal experience and research. Take good care - it does get better over time - be extra good to yourself. Hugs.