ENT : Long awaited ENT appointment... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

ENT

Nackapan profile image
15 Replies

Long awaited ENT appointment tomorrow. .

By telephone??

Rather overwhelmed trying to prepare.

Can't use landline abd only mobile loudspeaker with consequences.tinnitus head pains. Not a good start really. I. Amazed by telephone I first wanted a referral 3 yesrs ago but was refused. Gp months ago decided the ongoing vestibular issues must be addressed as not gone as hoped??

Always sn expetation however hard I try not to.

No idea how this will go .An early appt. But on the letter saying it coukd ve 3 hours either side!! In my case i Hooe not at 0500hrs.

Have others had help ftom ENT??

I was hoping for an examination.

Ear pressure

Tinnitus

Oral thrush

Bleeding tongue

Glass lije feeling in ears

Tight tight skull head pains

Headaches

Infected ear

Jaw tightness abd pins and needles across face and especially nose.

Eye sockets tight

Blurred vision lije a film over at tines

Light and noise sensitivity giving stagger walk sbd bdksnce issues

Nausea

A list recent vestibular migraine event over 3 days. ...well I'm guessing thars what it is .

Occipital neuralgia describe my symptoms

Hope it's a long enough call I csn tolerate .

Other than that, Other issues .

Breaking it down to be listened to an exercise of its own.

Couldn't even read the A4 letter sent .

Oh well 🤞

Written by
Nackapan profile image
Nackapan
To view profiles and participate in discussions please or .
15 Replies
cocoa profile image
cocoa

I did have a couple of referrals to ENT but it was in person some time ago. Nothing was gained from it but I think they are always trying to rule things out.

I also saw a highly acclaimed professor privately at Charing Cross Hospital. I had a hearing test among other things. I was then diagnosed with idiopathic ataxia. It gave me an answer but nothing else.

If you can, list all your symptoms and e.mail them to the consultant.

Hopefully your appointment will be helpful to you,

🤞

Nackapan profile image
Nackapan in reply tococoa

Thsnk you

Best of luck Nackapan let’s hope you get some answers x

Nackapan profile image
Nackapan in reply to

Thanks . Explanations would be good.

Narwhal10 profile image
Narwhal10

I do hope it goes well, Nackapan especially as it has taken 3 years.

I too find it bizarre over the telephone, you can’t examine anything.

I hope you will have someone with you whilst phone is on speaker.

franrose profile image
franrose

I hope it goes well - I had a referral to ENT from Maxillofacial a couple of weeks ago, but that was straightaway in person, I think because it was an urgent 2 week referral though. The clinician did the referral that way because he said I wouldn't get seen for ages otherwise and there were cancer risks with my symptoms. I had a similar situation to you with a colorectal referral earlier this year, they started off with a phone call and then when it was clear he couldn't do anything without examining me, he invited me in for a face-to-face appointment.

I won't describe my experience unless that would be helpful because it was disappointing and I don't want to add to any pre-appointment anxiety. I'm undiagnosed with PA/B12 and am struggling to get many health professionals to listen to me so the situation may be very different for you. I hope your experience is more positive and that the doctor will listen because you have a diagnosis.

For reference I share some similar symptoms to you, my mouth-based symptoms are ongoing daily sore throats for 6 months+, pain swallowing and inflamed, red tonsils, general gum pain & mouth dryness, red spots inside roof of mouth and a red stripe on my tongue. I also get intense headaches above my right eyebrow where there is a groove in my skull, and in the past I've had a vibrating/fizzy feeling in my cheekbone area/under eye socket.

Let us know how you get on.

Nackapan profile image
Nackapan in reply tofranrose

Good you at least got seen.

I had a 2 week urgent referral to dermatology ....

O was told by the nurse only way to get seen .

Bit lihe children being taken to A abd E for ear infections.

It wasnt cancer in my ear thak goodness.

A skin Infection that had nearly had healed after I eventually got a prescription I asked fir fto Gp. Took 4 months .

O had a 18m wait for a neuro Opthalmologist who had NO explanations let alone answers.

Thought anxiety !!! Say no more

The NHS are giving 'lip service '

It's very very worrying.

Om sorry to hear you have no help either or reasons.

My mouth Symptoms started after lots if dental treatment. Or coincidence??

The dentist said of course b12 deficiency effects your mouth and teeth

That’s like getting my car serviced over the phone. How bazaar! I hope the telephone consultation leads to a physical examination that you quite rightly deserve.

Nackapan profile image
Nackapan in reply to

I know .No physical examination atik offered j asked 😩

Timetraveler67 profile image
Timetraveler67

Hi nackapan just to share my experience with a ent which was just 2 years ago. He was very nice and gave me time to explain all my symptoms which some were similar to what you’ve explained you are experiencing. He sent me for a brain scan which came back normal which he sent me the results by letter. I continue to have symptoms I always have earache. Please let us know how you get on I wish you well you deserve answers x

Nackapan profile image
Nackapan in reply toTimetraveler67

So do you!! Explanations eoujd be s start. Thanks

earthnymph profile image
earthnymph

Hi Nackapan, I feel very strongly that you should have a face to face appointment. When they ring you, you could say that you think you need to see them in person. Your symptoms are extensive and complex, a phonecall will not do them justice. Good luck x

Nackapan profile image
Nackapan in reply toearthnymph

I agree. I asked .

The answer

No .

Rather deflated at present as we wait si long for these appointments.

His get iut was despite my symptoms I've had a brain mri which showed ' 'nothing sinister"

No words at present .

It's been over 3 years with daily debilitating symptoms

earthnymph profile image
earthnymph in reply toNackapan

I’m so sorry you’re receiving such ignorant, excuse-ridden ridiculousness. The use of the pandemic situation to excuse doing a fraction of a job seems to permeate everywhere we look. I despair that the values our health system is founded on have been lost in the blind mass hysteria that is trampling on human rights. You have a right to proper health care, and a right to reasonable adjustments within law, yet somehow all logic about this is absent. Do you have someone who can help you communicate with them? Patient liaison services or advocacy services may be able to help? I wish you all the best xx

Nackapan profile image
Nackapan in reply toearthnymph

Yes l know the process.Everything serns to be a battle .

I dud ask the right questions ect

Just wears ne out.

Be good if a nedic led the consultation .

Takes too much energy.

No idea what was on the referral.

Might as well as said

Give lip service to shut her up??

I used yo ve able yo access tge referrals easily Thst seems to ve blocked fton app ect too.

??

I will get the pressure on my ears checked abd revudit vedtibular physiotherapy.

Thsnk you for your thoughts .

Not what you're looking for?

You may also like...

ENT

I depair. Got my first ever ENT appointment. By telephone I explained can't use a landline so on...
Nackapan profile image

Advice please

Hi I did post a good while back but seem to be getting more symptoms which I think could be B12...
kirsty1946 profile image

Hydroxocobalamin sublinguals really helping, could they help others?

Hi, I would like to share my experiences of low b12 in the hope that it may help others. I have...
Highland49 profile image

How Do you Know When You're On Enough B12?

I'm normally on the thyroid forum but have posted on here a few times and I would value your...

Silent Reflux and B12 Deficiency- Any Link?

Hello! I was diagnosed with low B12 following a blood test in December last year, on injections...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.