United States

[bonniekelly]

Is there a United States section on the forum? I'm getting lots of great information but some of if doesn't follow US healthcare.

Thanks in advance!

[Gambit62 Administrator]

I'm afraid not - though may be members from the US will be able to respond to this post. Aware that we can be a bit UK focused in terms of treatment protocols so would be good to have more input from US

There are a couple of PAS support groups in the US (St Louis, Missouri and LA) so might be worth joining the PAS proper and contacting them

pernicious-anaemia-society....

pernicious-anaemia-society....

[bonniekelly in reply to Gambit62]

OK! Thanks.

[alamogal635 in reply to bonniekelly]

Bonniekelly, i am from the US--Texas to be exact. Regardless, I find the information here helpful--nothing like it in our country. Also a PA member with the UK. I've been able to get a lot of information from this site and much of it I can look up on places such as Amazon--even the one in the UK. Stick around and you might be able to find out more answers than you would imagine. I don't know what I'd do without these great people. Wishing you the best. Mary

[pvanderaa]

Here in the USA the injections are cyano typically on a monthly basis.

It didn't work for me and I'm now on weekly prescription of cyano injections and supplement with methylcobalamin sublinguals from Costco. I get my folic acid at Walmart.

The info aimed a British doctors still applies but is usually discussing hydroxocobalamin which is given in three month injections. I was living in the U.K. When I was diagnosed with the B12 deficiency so I've dealt with both systems.

Some labs here is the USA add a caveat to B12 blood test result when the numbers are under 400 pg/ml (ng/L in the U.K.) that 10% of the population exhibits neurological symptoms.

I live in West Virginia and find this site very helpful, albeit I have to translate the English language on occasion 🤠 i.e. something George Bernard Shaw once said.

[Hillwoman in reply to pvanderaa]

I have to translate the English language on occasion 🤠 i.e. something George Bernard Shaw once said.

Do you mean we're "divided by a common language"?

[helvella]

bonniekelly,

About sixteen or so years ago, when I first found the need to look for medical information and support, everything seemed dominated by the USA. All the active forums, news groups, "message boards", sites, and so on.

Of course, there were some UK-focussed ones, but far fewer and often ignored.

It is sad for those in the USA that many of those have disappeared or just left to rot. Many of the Yahoo groups have been abandoned - and who can blame anyone for running from Yahoo!? Many newsgroups fell victim to trolls and spammers even while they were still active.

Everything seemed to migrate to highly commercialised sites including the great big monster of them all, Facebook.

Then HU came along and, being based in the UK, gave a headstart to UK-based organisations.

So I know how it feels to not to have your own country as the prime focus of a forum.

[Holnee]

I'm from Massachusetts and would be happy to share my experience if you have specific questions.