Hi

I just joined and would like to introduce myself. My name is Lilli and I'm 61 years old. I was diagnosed with PD 4 years ago. I'm married and live in Farmingdale, NY, I have two grown children and a 4 year old granddaughter.

I have PD on my left side, with hand and arm tremors and a slight leg drag. I work in a school as an educator and plan to retire soon. I am very active in the PD community, volunteering and fundraising. I am also an advocate and support group leader.

I look forward to discussing information and sharing experiences together.

Lilli

50 Replies

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  • Welcome aboard,

    My Name is alan and i live in Scotland in a village just out side of Glasgow.

    i am so glad you found us , we are an eclectic bunch of Parkies who share , support and help each outher in our darkest moments , we also have fun

    regards

    Al

  • Hi Lilli :-)

    A very warm Yorkshire welcome to this wonderful site. My name is Andy and I live in the steel city of Sheffield I'm 50 yrs old and I was dx in Oct 2011 I have a tremor in my right hand. I am a support worker working with young adults with learning disabilities. You couldn't find a better bunch of people than on here. Any questions you may have or stories to tell or you just wanna have fun then you need look no further. You will never go short of friends on here.

    I look forward to your blogs.

    Take care

    Andy :-)

  • Hi Andy,

    Its nice to meet you. You and I have something in common besides PD, I work with learning disabled high schoolers ages 14-18. Looking forward to hearing from you again.

    Take care,

    Lilli

  • Hi Alan,

    Its nice to meet you. I'm looking forward to joining your bunch. We all have good days and bad days, and knowing there are others who understand those bad days, means a lot to me.

    Take care,

    Lilli

  • Welcome. Hubby was diagnosed 5 years ago. As a caregiver, I have my own view of PD. We are in NY State

  • Great to meet you. My husband is my caregiver. Looking forward to hearing from you soon.

    Take care,

    Lilli

  • We are near Buffalo. Where is Farmingdale?

  • Farmingdale is on the south shore of Long Island.

  • spent a week on Long Island many years ago training for a job. It was in Glen Cove.

  • I'm further east, about 20 minutes from Glen Cove.

  • hi lilli

    i am Jill and have PSP(google iit o rread my "about me" blog)

    but the parkinsons site is a great one - we have fun too - jokes / onlien parties and r very supportive and helpful to eahc other

    lol Jill

    :-)

    i learnt how to do smileys on this forum!

  • Hi Jill,

    Great meeting you. I looked up PSP and read your blog. You have a great attitude. I'm looking forward to the jokes and online parties.

    Take care,

    Lilli

  • Hi Lilli, welcome to a very supportive site---think you will be very happy you came aboard. Wifeofparkie, I see you live not all that far from my location. I was diagnosed in March 2006, continued working until April 2011 when I retired from my nrsg career that spanned 46 yrs---so far have been progressing slowly with the PD---it is a daily battle with myself to keep the upper hand but I am not going to let the disease get me any sooner than it has to. Well it's late and time to say good nite to all. Gail

  • Hi Gail,

    I am very happy I joined. I have gotten so many well wishes from many thoughtful people. You sound very strong, a person who is a fighter. I am very much like you. I fight this disease everyday. I push myself to work hard at my job and in the Parkinson's community. I am hoping after I retire to work for a Parkinson organization. Will talk to you soon. Lilli

  • Hi Lilli

    welcome!

    I am a recent joinee and feel reassured that should I need any advice or encouragement I can find information, support and positive thoughts within this group. I am lesley a retired teacher from newcastle upon tyne UK dx last autumn.

  • Hi Lesley :-)

    As ypu are a recent joinee let me extend a very warm welcome to you. I hope and I`m sure you will enjoy this awesome site :-)

    Andy x

  • Hi Lesley,

    I agree with you and know I made the right decision in joining. Lilli

  • hi lilli,

    i live n france near limoges - welcome to the best PD forum out there - it is very true what lesleyd says - if you hve any quiries or problems - wheather its bout meds or personal stff there is always someone ready to help s

    so we are all in the same boat

    love sha xx

  • Hi Sha,

    I'm so glad I found a place where I can get encouragement, information, support and advice from people who understand and care.

    Thank you,

    Lilli

  • Welcome Lili. I am a carer for my husband who has pd and dementia. This site is so good as you know you are not alone and that others understand.

  • Thank you, I'm so glad I joined. Lilli

  • Hi Lili I'm on West Side of NYC. I'm getting better but PD (10 yrs noticable). I'm in a wonderful exercise program starting by my neuro where I meet other pwp's and have fun.

  • Hi Pat,

    Exercise is the answer. After PT I feel so much better.

  • Hi Lilli and welcome. I am a caregiver for my husband who has PD and Dementia - we are from Cincinnati OH. This website is fantastic with the questions, answers, info and stories you read. Don't be afraid to ask any question or ask for info as we are all in the same boat helping each other.

  • Thank you, I'm sure I'll be on this site often.

  • Hi, Lilli. Welcome aboard this wonderful website. I was diagnosed in September, 2009 and have found support with this group. I live in Indiana. Looking forward to reading your posts.

  • Thank you, I look forward to discussing information and sharing experiences.

  • Welcome Lilli. My name is Terri, I'm 63, married with 2 children and 3 grandchildren, diagnosed July 2010, and live in San Tan Valley, Arizona. I'm so happy I found this forum and I'm sure you will be too. There is a great group of people on this site. :-)

  • Hi Terri,

    I agree with you, this is a great website. I've gotten so many welcomes from people who undestand and care.

    Take care,

    Lilli

  • Good Morning from FL, and WELCOME.

    Regards;

  • Thank you, happy to be here.

  • Bellflower, California adds a warm welcome. You have joined a community of PD people with so many helpful hints, and resources for care and information. Best of luck to you.

  • Thank you. I have received so many well wishes. I know I made a good decision signing on to this website.

  • Welcome Lilli!!!

    Steve (Bisbee, AZ)

  • Hi Steve,

    Thank you, so happy to be part of this group.

  • AMAZING people from around the globe..........a shame we had to meet because of PD but when you think about it-------its a gift to be able to connect to so many wonderful & diverse people. Hope all are having a good day, looking forward to the weekend and the 1st of September gail

  • We are so fortunate to be able to connect with others who understand and care. Hope you have a nice holiday weekend. Lilli

  • Good afternoon Lilli, my name is Kathy (Precious44) I just jointed this group myself a little over a week ago and it already feels like home. I am 68 soon to be 69 in Jan, I have 3 grown sons, a son in heaven, 9 grandchildren and 3 great granddaughters. I have had PD for about 5-6 years, that it has been obvious. I live in Tracy, California which is about an hour and half from Sacramento, the state capital. I have been divorced for 22 years, I was married to my high school sweetheart for 30 years. Four years after my divorce I met Ron, the man of my dreams, he was wonderful we had so much fun and love. He passed away 3 1/2 years after we got together. September is a hard month for me, it's my son Ricky, who died in a car accident, his birthday, it is the anniversary of Ron's death and Ron's birthday also. This site has so many compassionate, caring, kind and sweet people on it. I may not be on a lot in September I hope to go to Santa Cruz, where I grew up and where my Ricky and my Ron are. Welcome and I hope you find this to be good fit for you. I should tell you I am long winded. my PD has made it impossible for me to write, so the computer is my voice to the Big world out there.

    You're welcome to read my blog and my information....it's Precious44

    Oh, and I give hugs..because I need them

    Hugs, Hugs, Hugs

    Kathy (Precious44)

  • Kathy-So sorry for all the losses you have suffered in your life. I cannot imagine the pain you feel, especially during this difficult month. Hugs, hugs, hugs to you. Look forward to "seeing" you in October, but remember that we are always here.

  • kATHY, so sorryt for your losses and I hope you find the comfort in Santa Cruz that you need to get thrrough Sept. I too am long winded...no shame in that...lol. I wish you a safe and comforting journey and look forward to having you back when you're ready. GIANT ((((HUGS))). gail

  • Kathy, I am very sorry for your losses. I hope you'll find peace and comfort in Santa Cruz. Looking forward to speaking with you when you return, I am also writing a book. Safe journey and many HUGS, Lilli

  • Hi everyone. I don't think I ever introduced myself ans I've been here a little while. I was diagnosed in February 2010 and continued to work until February 2012 at which time I went on total disability. The stress and anxiety of my job really triggerred the PD problems. Its great to have a place like this to go to for support!

  • Hi jenette, and hi everyone. I also don't think i ever introduced myself, and have also been aboard for a short while. I was diagnnossed about 2 years ago. Taught religious school for 16 years, andd receently was forced to retire by pd symptoms including exhaustion that made it impossible to maiantain my level of teaching. It is nice to have a place to come to, where not only ccan I relate to so many, but I don't have to correct my typing errors as you all understand!!!

  • Hi to both of you and everyone, I don't think I ever introduced myself, although I've been coming here for some time now. I'm 71, diagnosed nearly 11 years ago, divorced 26 years ago, live in the West Midlands UK, have a daughter, son in law, and 2 grandsons, worked as an occupational therapist for 40 years, (retired about 8 years ago) but didn't recognise PD in myself. If we have to have Parkinson's we are lucky in some ways, with all the different treatments available, all the research going on, raising of awareness by celebrities who have told the world they have PD, and most of all, the internet which needs no explanation!! :-)

  • Hi Jenette,

    I also have a stressful job and plan to retire soon. I know this job has made my PD worse. Its good to know there are people who understand how you are feeling.

  • Isn't this great look at all the responses from a simple hi. Was looking at where u guys are at that's interesting to me I'm in texas love u all

  • Hi from Jane in Maine. I've had my Parkinson's diagnosis since July 2007. Time flies by, doesn't it. Great site, lots of helpful information. If you have a question about PD symptoms, medication, or life with PD, this site is a great resource. Someone somewhere has had the same and can help you with possible answers or support.

  • Its nice to know you have a place to get help.

  • I forgot to tell everyone where I'm from. I live just outside of Reading Pennsylvania

  • Hi,

    I've posted in response to comments but never introduced myself. My name is Susan, I'm 71, live in Palo Alto near Stanford University and Medical Center in the San Francisco Bay Area. I had Chronic Fatigue Syndrome for a number of years, but I was later diagnosed with Parkinsons. Looking back I see a lot of the puzzling symptoms were actually PD, but none of the many doctors identified it until Oct. 2010. I'm married to my second husband and between us we have four children, 10 grandchildren, one great grandchild with another on the way.

    I've been on many internet posts and in person support groups. I love sharing with others.

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