100 Marathons With Parkinson's

[jimcaster]

I just read about a woman named Rhonda Foulds who was diagnosed with Parkinson's disease in 1999. She ran her first marathon in 2010. SHE RAN HER 100TH MARATHON EARLIER THIS YEAR IN FORT WORTH. Most of us will never run a marathon, but I will never look at this disease with quite the same fear again...and, with twisted toes and increased optimism, I will hit the treadmill and exercise bike until I absolutely can't. Let's EXERCISE.

dfw.cbslocal.com/2020/02/11...

[MarionP]

Oh we are gonna hear about it now from fast walker guy!

[jimcaster in reply to MarionP]

John may be a little zealous and may be a lot lucky, but I think his heart is in the right place and the evidence supporting exercise is irrefutable.

[MarionP in reply to jimcaster]

Of course, I'm a fan for that reason.. As soon as I move to a desert, can't stand any humidity. It'll happen.

[Kwinholt]

You go Jim. If I can do it , so can you, The majority of my 85 marathons and several ultras are before PD diagnosis but I’d say about 15 are after diagnosis. Definitely not as easy as it used to be and right now still recovering from a severed hamstring , I’ll be happy if I get back to running 5 miles a day. I’ve been walking everyday bc as we all know exercise helps with everything . GO JIM GO!! ❤️ Karen

[jimcaster in reply to Kwinholt]

Thanks, Karen! You are also a great inspiration! I can say without hesitation that I won't be running marathons, but I am going to keep exercising. 😊

[jeeves19 in reply to Kwinholt]

How do you maintain a decent supply of dopamine throughout? I imagine that I’d run out at the 6 mile point and then require a top up. Only thing I’d that (as you know) it doesn’t work immediately .

[Kwinholt in reply to jeeves19]

Jeeves, yes when I do long runs I do have to take extra . It took some time but I know my body pretty well and can tell when it’s getting time for more when running. It wasn’t easy at first and had some bumps along the way. Also, made me realize that not all generic cd/ld are the same as well. Take care. Karen

[jeeves19 in reply to Kwinholt]

Thanks Karen. Do you have any off time during the runs or do you manage to avoid this? My problem these days is that by the time I feel the ‘off’ coming on I then have to wait 30/40 minutes for the new dose to take. I’m presuming that you don’t wait for the ‘off’ to happen by taking the second dose earlier than you’d need to normally?

[Kwinholt in reply to jeeves19]

Jeeves, you are correct. That is only on my runs that are 15 miles or more. However , I am recovering from a severed hamstring surgery and haven’t been able to run for months so I may be starting over with my body and knowing what works best for it running , when I’m able to try and run. But I’ve been walking and I can also tell with walking when things start changing , my foot, gait , neck and shoulders ect. Karen

[kaypeeoh in reply to Kwinholt]

I quit counting after marathon #50 when I switched to ultras. I think it's a coincidence that my running soured after the PD diagnosis. In the same time frame I developed Achilles Tendinopathy. I've been treating myself with mixed results. Plan B might be finding a podiatrist who knows the newer treatments for tendinopathy. Long-term I plan to buy an RV so I can live near the races I never could handle and train there. There are 3 ultras in Wyoming, there's the Leadville 100 in Colorado. Then come winter there's ultras in Arizona. I recall a race in Tucson in December when the Saguaro cacti were decorated with Xmas lights.

If my running never comes back there's always the 2000 mile Appalachian Trail.

[Kwinholt in reply to kaypeeoh]

Kaypeech, I as well about the counting. I bow to you . The longest distance I’ve done is 50 miles and I truly love the 50k. I would have to go back and look to see how many 50k I’ve done. I love trail running but is more difficult for me with the PD and dystonia. I’m hoping I’ll get back to running but I have been a good girl this time around and really listening to the dr. I don’t ever want to experience the pain of a severed muscle again . Take care . ❤️ Karen

[Kia17]

Jim

I am sure that you know my main symptom from the beginning was exertional toe dystonia which I donot have it anymore. I can fast walk without dystonia. I have ZERO dystonia now after nearly 5 years of living with that.

[Farooqji in reply to Kia17]

Did Dr. Farias technique work for you

[Kia17 in reply to Farooqji]

Dr Farias technique is the main source of my dystonia recovery.

[jimcaster in reply to Kia17]

I remember that, Kia. I bought and used Magnesium-L-Threonate for a few weeks but saw no improvement. Is that what eliminated your symptoms? How long did it take before you saw results? Maybe I gave up too soon.

[Kia17 in reply to jimcaster]

Jim

Magnesium is a must for PwPD but not the only thing. The best way to recover from dystonia is to retrain your muscles and brain.

I highly recommend reaseching Dr Farias technique. In my opinion he is the only one globally who undrestands dystonia and has a remedy for it. He had dystonia himself.

[TL500 in reply to Kia17]

Did you consult with hime or just researched and followed?

[Kia17 in reply to TL500]

Online Dystonia Recovery Programme

[TL500 in reply to Kia17]

Thanks

[TL500 in reply to Kia17]

Kia, how long did it take you to practice to recover?

And is it hard to do online?

I have a daughter (23 yo) with cerebral palsy and has dystonia (I think) I am hoping we can try this for her.

Is it expensive? Thanks.

[Kia17]

Hi TL500

I had it for 5 years and did try everything but didn’t work. I started Dr Farias technique almost 3 months ago and have had no dystonia in the past 3 weeks. I pay $35 subscription fees monthly. You have to dedicate 2 hours a day to practice.