DBS: Is DBSgood? Iim diagnosed 7 years... - Cure Parkinson's

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DBS

michaela13 profile image
10 Replies

Is DBSgood? Iim diagnosed 7 years 1sinemet every 2and1/2 to 3 hrs. I have every symptom excpt tremors

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michaela13
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10 Replies
Andy_F profile image
Andy_F

Dbs has effectively eliminated my bradykinesia, made walking easier, and given me my life back. It was very straightforward and not in any way painful or distressing.

Richter profile image
Richter in reply to Andy_F

Well said! I'm so glad it went well.

Bailey_Texas profile image
Bailey_Texas in reply to Andy_F

Hello Andy

Are you saying that drilling holes in your head has no pain and does not cause any type of worry or stress?

Pelley profile image
Pelley in reply to Bailey_Texas

Any amount of worry or stress involved in is more than offset by the positive results of DBS. Even thru re-programming, progressions and difficulty/pain included, I can't help but think how my life would be without it!!

Bailey_Texas profile image
Bailey_Texas in reply to Pelley

I agree with you .

Sjarr7 profile image
Sjarr7

Had DBS surgery in 2015. Have problems with freezing, still. NOW they tell me it helps walking but NOT freezing of gait. It seems to me that tremors is really the only thing the surgery does help and if I could do over again I would NOT have DBS surgery. Good luck to you.

jackedmonston profile image
jackedmonston

This study shows positive results for DBS.

nejm.org/doi/full/10.1056/N...

Maja54 profile image
Maja54

Hi michaela , I have PD about 12 years. Had a DBS for 7 years.I do not have the shakes either , but the stimulator helped .You see in between the meds I got very stiff and uncomfortable . It felt like board . Could not relax . After the surgery it all changed. the stiffness was milder , I could move better ,it was easier to cope with the disease .After the surgery they have ti adjusted the stimulator slowly, until u reach the level you can tolerate and believe me , it's a trip .sometimes I was buzzing .When they increase it to much. Not to worry it was don in the office.

So even I had some problem with infection ,had to doit 2x . I am glad I did it.

But don't do it just because of my story , the surgery is long, 9 hr. half of the time you are awake. Think if it's worth. Good luck

Maja

Ppatty profile image
Ppatty

What is DBS?

christymw profile image
christymw in reply to Ppatty

Deep Brain Stimulation.

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