Hi Im new here

[NvaGivUp]

Australia. I was an RN at Emergency Depts mostly. Got diagnosed with PD in 2010. My story is your story in a way. Im here to share and learn. Fortunately one fine day in 2008 I had enough insight to quadruple my Income protection for my own profession only. With the payout we bought a house. Theres plus's and minus's with PD thats for sure. Never Give up. Im convinced 50% at least of symptoms are exacerbated by the mind. I cant over estimate the importance of exercise. Anyway I dont want to sound preachy.

[faridaro]

Welcome to the group. We are all here to share our ups and downs and learn from each other so don't be afraid of being preachy.

[NvaGivUp in reply to faridaro]

Good to hear, I was treading softly at first. Oh Im not afraid of preachy. Heres my share. Fear of PD, anxiety about the future, worry are a total waste of time. Ive spent the last hour and a half reading posts here and theres a lot of sharing of depression and the like. I sympathise but its often not endogenous, rather its outside of the brain, its circumstances. Dealing with whatever it is that brings you down is the key with PD so that a positive attitude can be found. Assess, make changes, reassess, adjust. Get rid of whatever and whoever is dragging you down.

[faridaro in reply to NvaGivUp]

Exactly my sentiment, which I described in the post "when you hit an iceberg".

[NvaGivUp in reply to faridaro]

Dude I edited after your like

[faridaro in reply to NvaGivUp]

Easier to say than done - some Pwp lack motivation

[NvaGivUp in reply to faridaro]

Well thats a choice too

[Beckey in reply to NvaGivUp]

Not always.

[NvaGivUp in reply to Beckey]

If an unmotivated person can talk about lack of motivation they can follow the breadcrumbs back to the source of the motivation block. Peeps make choices not to be motivated then forget that they made that choice. Shrinks make a fortune digging it out. Its cheaper just to say to hell with it and do something positive, esp exercise as it will open up your memories and provide a boost to the body / mind.

[Bazillion in reply to faridaro]

You don’t have to have PD to lack motivation, there’s a lot out there without PD with little or no motivation ,don’t use that as an excuse not to make changes in your life.

[Bazillion in reply to NvaGivUp]

Good sound advice .Totally agree about a lot of posts sharing depression, and the need to accept and deal with it so you can move forward.

Constantly talking about it won’t make it go away,doing something about it will!

[rebtar]

As someone who has had to deal with a lot of depression, but not currently, I want to respond. In the middle of a depression, its not always possible to see your way out of it, to do what might be helpful, or to actually believe that anything will help. It can be a VERY dark place, where you need outside help to take steps forward. I think if people on this forum feel really down, or unmotivated, or anxious, and reach out for help and connection that's absolutely fine and part of our conversation and the reason for the forum. Reaching out for help and to be heard can be an essential step towards getting better.

[NvaGivUp in reply to rebtar]

Yes, thats true endogenous depression is a serious illness

[ddmagee1 in reply to rebtar]

You really understand the depth of how severe depression can actually stop a person from being able to help themselves. It can be a very dark place, where one feels there is no hope. That is why, when one talks about that in this forum, it’s good when we can be supportive of that person! Sometimes, intervention is needed when one loses all hope, and a deep depression can sometimes do that, where one feels so bad that they are unable to help themselves. It’s like being frozen in time and being unable to move. The depressed person is actually unable to motivate themselves. Thank you for your input. I agree with you. For many of us, diagnosed with PD, depression can be a symptom that’s very difficult to deal with.

[Ewcia]

Are you on medications for PD? I was diagnosed this year. Trying yoga, meditation,exercise, healthy diet to slow down the progress of disease. Not taking medications at present. Cheers.

[NvaGivUp in reply to Ewcia]

I held out for 6 years. My poor old school but good man neurologist thought I was taking them. I was in a quandry because I needed some meds in 2016 but needed the lower starting doses that he put me on years back in 2013 and an up to date review. Diagnosed in 2010 btw. So he retired suddenly. I went to a young guy in Dec 2016 told him the story, he just laughed. The rest is history, Azlect, Sifrol Madopar . UPDRS score total 13 out of 199. Behavioural mental 0. Daily living 3. motor 8 dyskinesias 2