Thank you so much for your continued interest in this survey. We are still in the early stages of collecting responses, but we have begun to analyse sections of the survey.
We have already found, for example, that 75% of respondents have never been offered genetic testing and will soon be correlating this with factors such as who was young onset
Once we have collected more responses, we will start a more detailed analysis of different sections of the survey results. It would be wonderful if anyone would like to share their views and continue to contribute to the survey, thank you!